First, the corny bit: I walked into the ocean late this
summer in a foul mood and, seeing how vast and impervious she was, had the
tremendously novel idea of dropping my burdens into her salty depths. Then,
crying and exhausted and overwhelmed and a little relieved, I sent out a
prayer/question, “How do I live a life of peace?” The answer washed over me
right away: “The way to live a life of peace is to live a life of peace.” I
probably read this in a Dalai Lama book or some such but still it actually sank
in at that moment.
The answer was simple, maybe obvious, but, for me, to truly
feel it was revelatory. As an erstwhile
yoga student and teacher, I have often noticed how many times we humans can
hear the same thing but never really listen. One day, if we are lucky, we
actually hear a teaching –
“Listen to your breath,“ or “Relax your diaphragm or “Let go”…” – and it’s, um, deep.
So of course I then thought to ask ANOTHER question, because
I am greedy like that. “Okay,” I conceded, “That’s a great idea, but just how
exactly do I ride the waves of my amazing yet zany life?”
“Ride the waves,” came her reply.
Now it’s good old back to school time and the waves are in
full force. G hearing me say “It’s almost time to go,” and slipping his
sneakers on the wrong, sock-less feet and running out the door in his underwear
and pajama shirt, Z making her teacher wait an extra ten minutes at the end of
the day because she is “helping” her friend pack her backpack and making sure
she, Z, is in total control.
At the end of each day, I try to sort of gather together the
turbulences – good and less-so -- of the day and settle the clan into a smooth,
peaceful sleep.
First comes Z’s bedtime routine. Since she has excellent executive
function, she can be given ten steps at once and she will follow them --
efficiently and in order. She might potentially add two or three nefarious and
unwanted (by parent, teacher, etc.) steps as well if left to her own devices,
but she can keep lots and lots and lots of instructions and information in
order in her mind. She needs no prompting to follow an impeccable bedtime
routine in which all the right parts get cleaned, voided, brushed and rendered
ship-shape.
Yet putting Z to bed is sometimes an unhappy time, a time of
struggle. Most days, worrisome and/or upsetting behaviors have occurred and I
wonder if I should process them with her at bedtime. As I am tucking Z in, I may remind her of certain things I
am trying to teach her. Just as many social rules that seem obvious to
neurotypical people do not seem naturally clear or obvious to people with
autism, Z, as a small person with an attachment disorder, needs help navigating
the ethical universe most people try their best to share.
I might tell her, “You need to follow the same rules as
other students, like when it is time to leave the classroom everybody leaves
together,” or “During school it is a time to listen and respect your teacher.”
Variations on the phrase, “Telling the truth sometimes seems harder than lying
but in the long run it’s a better thing to do – and you will get in less
trouble, too!” are frequent contenders for this nighttime slot.
I always try to remember to add, “Tomorrow will be a better
day,” especially on the really rocky days. After all, hope is so important! As
defeated as I may feel, I also try to sing her a song, sometimes a very short
song, and give her a kiss. Then I escape before she can get me with “puny arm!”
(If she puts her [puny] arm around me I pretend to fall asleep.)
I know rationally that the primary caregiver is the one with
whom the child with an attachment disorder displays the most reactivity and
testing. Some nights, though, I desperately wish we could just snuggle, that my snuggling wouldn’t feel like it was
transcending another rough day, that it would just feel simple.
You know, like living a life of peace. *
As Anne Morrow Lindbergh says, in Gift from the Sea, “Don't wish me happiness --
I don't expect to be happy all the time...It's gotten beyond
that somehow.
Wish me courage and strength and a sense of humor. I will
need them all.” With this daughter of mine, how I pray for courage and strength
and – above all - a sense of humor.
Then it is bedtime for G. G does best being told one to
three (max!) steps at a time and is very literal. His bedtime routine requires
some oversight to make sure he enacts the most basic aspects – brushing teeth,
using the toilet…Order of direction is important, too: he will not think twice
about taking his fluoride pill before brushing his teeth, for example, if
that’s the order in which they are mentioned.
After he gets ready for bed, as I am walking into his room,
G often runs in, leaps into his bed, pulls the covers over his head and shouts,
“Mom, try to find me!”
”Mom, try to find me”??? I am sitting on the edge of your
bed, from whence your voice is clearly issuing!
I hate when he does this. It makes me catastrophize and
project that he will never, ever be able to be all right on his own.
But on this particular night of which I write, the night of
the leaving-the-house-in-underwear day, I – as usual -- laugh and tickle him
and cuddle up to tell his nightly story:
Once upon a time, there was a brave
and noble knight named Sir G-ahad, and he was known far, far across the land
for saving unicorns, and seals, and anything else in need, and for being a
little bit different, and for being brave and kind. [All of his stories start
in this way.**]
One day, as Sir G-ahad was sitting
in the court at Camelot, a beautiful Princess came running in and cried, “Sir
G-ahad, Sir G-ahad, a terrible dragon has stolen my unicorn!!!”
Then she looked at Sir G-ahad and
started laughing because Sir G-ahad was in his underwear and a T-shirt and the
shirt was tucked into his underwear. AND he was wearing his noble knight boots
on the wrong feet and without stockings! The Princess was laughing so hard she
lost her faith in the brave and kind Sir G-ahad and left to find another
champion for her cause. [G looked very sad as I told this part of the story.]
Well, that Princess searched far
and wide and no knight was able to help her, though many tried and failed,
because no knight was quite as brave and noble and kind as Sir G-ahad. Finally
she returned to Camelot, and found Sir G-ahad at the round table wearing a more
normal outfit.
“I am sorry,” the Princess told Sir
G-ahad. “I think I have learned my lesson that I should never have judged you
because you were a little bit different.”
“You were right in a way too,”
admitted Sir G-ahad. “A knight should pay at least some attention to his noble
attire.”
That said, Sir G-ahad set off on
his noble knight steed, Corny the unicorn, found the terrible dragon, drew his
mighty sword and – lickety-split -- the dragon ran crying home to his Mama.
And everyone said, “Thank you, Sir
G-ahad. You saved a unicorn…again.”
I sing him a little song and eventually start to get up. G
grabs me and almost knocks me out with a headbutt from his giant, rock-hard
head.
“Oh, G,” I groan. “Can you please try to be more aware of
where my body is?”
“I don’t know,” he says.
Fair enough.
There’s a lot I don’t know too. Our Full Spectrum runs from
the gifts and challenges of aspergers to the wounds of -- and efforts to heal
-- reactive attachment disorder. Before either of my children had a label, I
spent even more time feeling tumbled in this ocean of parenthood. A lot of
parenting advice besides
1.
Love your children, and
2.
Be consistent
is useless in my situation. At least now I know why a lot of
the standard stuff doesn’t work --
and a few things that do, thanks to the insights that came with those labels.
Now I also know “ride the waves” and “live a life of peace,” which feel like
they can be applied to just about any situation if I can remember to do so
amidst the unruliness of daily life.
Waves, try to find me! I’ll be hiding under this here Living
a Life of Peace blanket,
Love,
Full Spectrum Mama
* Joke.
** Z gets the same format: her chivalrous deeds are done
under the banner of Sir Shawty.
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