FOURTH ANNIVERSARY LISTS III: CHOOSING YOUR BATTLES

Dear Persons,

We only have so much energy in life. In my last post, THE FULL BUCKET, I wrote about what happens when that energy is all used up. Choosing your battles is one way to ensure you avoid getting so drained that you are no longer able to function well...

This year, I will give two simple examples from the Full Spectrums: Armpits versus Teeth, and Grades versus Manners.

Choosing your battles doesn’t mean you abdicate any discussion of or efforts toward other areas of life – it just means you reserve your mightiest strength for those areas that seem most deeply important for yourself and/or your loved ones.

Here are two choices I’ve made for us:

            1. ARMPITS VERSUS TEETH

Middle schoolers stink. Even with deodorant. Especially if you start with the crunchy granola natural stuff. We are on the Old Spice Ultra-Chem Turbo Level by this point but it only gets applied, shall we say, intermittently. You see, my G has very, very little interest in hygiene. So if I want to be sure he is doing something hygiene-related, I have to supervise.

I stopped brushing teeth with G about a year ago, trusting that he would take responsibility for this important matter. We found out the hard way last fall – when he had to go under general anesthesia to have a tooth pulled --  that he was not ready to brush his teeth alone. Now we brush our teeth together again, with him leading. Ten brushes in each spot. This is non-negotiable.

Sure, I ask G to put on deodorant and ask him if he has done so...but with my limited time and energy, sometimes deodorant doesn’t happen. Tooth brushing does.

Always.

            2. GRADES VERSUS MANNERS

How many talks do your children really want to listen to? Z is one of those people who is able to excel at anything she cares to excel in...So her consistently getting all threes (“meets grade level expectations”) on her report card is...unexpected. Sure, I’ve talked with her about this – quite a bit.

But I reserve my most heated, heartfelt talks for the area of what I call “real manners” (i.e. the manners that are about kindness and respect, not the right fork). Because Z has grappled with an attachment disorder since she came home, she’s always had issues with feeling she doesn’t have enough, and with control. These factors come into play frequently when it comes to sharing and treating others with basic respect.

I know Z is a tough cookie who will always make her way successfully in the world, so I don’t lecture too, too much on grades and hard work. But for her to feel good inside -- and for others to feel comfortable around her -- she needs to learn to act with “real manners” in heart and mind. This, like tooth brushing, is non-negotiable, so I save my heartiest lectures for this subject.

Because I am not at her all the time about certain other stuff (grades, etc.), we are both able to be more fully present in this important, healing arena.

We are all works in progress. It matters that we take a little time to see where our efforts can be most effective – and to ponder what we most value.  This can vary, of course -- the key is to take a step back and determine which battle you will choose.

The next and final anniversary post will be the most popular, putrid  post of the year: THE COMPLAINT DEPARTMENT!!! We at FSM are a leetle behind this year on account of because life, so there’s still time to get your COMPLAINTS in!

Thanks and love,

Full Spectrum Mama

A Petite Follow-Up Spectrum

Ah, summer: that special time when school is out and those of us who are primary caregivers to young children and who either cannot afford to send them to camp all summer or choose not to (or both) find ourselves faced with long days full of endless possibilities of a nonetheless limited sort. The luxury of choosing to be at home with the children during the summer is not one I have during the school year, and its result for now is a piquant combination of gratitude and exhaustion.

The other morning, Pardner was about to leave the house for a fourteen-hour day that would start at the farmers’ market and end with restaurant cleanup. He asked me what my plans for the day were.

I pictured the day ahead of us – a minefield of possible tantrums and stomach upsets for starters, the dull hours of the “I have nothing to do” chorus, the sweet and cherished snuggles, unexpected giggles and opportunities (responsibilities) to create memories of a carefree, wonderful childhood.

“Well, we’ll probably head to the farmers’ market later and we do have some parties to go to...” I ventured.

“Must be nice,” he chuckled.

“Well, if you must know, I might like to do some writing for my much-neglected blog or tackle my course prep or practice yoga or take a nice long run or even sit in the hammock and read a book while eating bonbons today but those things are not among my options,” I retorted, somewhat defensively…

At said farmers’ market I ran into a girlfriend who was there with her “surprise” child – conceived while she was on birth control in her early forties and her two daughters were in their early tweens and her life had begun to free up. I told her about the above exchange and she laughed heartily, resignedly, only slightly bitterly…

Some school-less days, we spend the whole day looking forward to that treasured half hour after the kids are in bed, that bit of time we have to ourselves before we pass out. In summertime, official bedtimes stretch out -- for us, 7 and 8pm become 9 and 10 and later.

And then sometimes, as soon as they are in bed, we miss them! Right?

That said, here’s what I currently am able to offer, given my summery circumstances: a petite follow-up spectrum to selected past posts:


“Tommy” (from “Would you rather…I”)
I found out that I was right: Tommy’s elderly mother did pass away and he did have to move. However, he didn’t have to go too far: he was taken in by his Aunt, who lives closer to the center of our small town. He has brothers who are very devoted to him in the neighborhood to boot! He now strolls happily with his walking stick around the town square, which has been called one of the most lovely in New England.

Figure I: The Empty House up the street, which was Tommy’s home. It is no longer quite so sad to see.

Tripping/Boundaries (Toilets)/Diet/Diarrhea

We have been gluten and casein free for over a month.



Those of us with weak stomachs still have ‘em – G’s is about the same and mine is noticeably worse. Migraines? Worse. Red mask-like skin? Worse. Reflux?  Worse.

Compensatory eating has also become a factor, insofar as we resent not eating certain foods and those substitute items we do eat are generally awful (so naturally we need to eat more of them).


I understand, though, that this process can take at least three months, so we are sticking with it for now. As for the fake-gluten and fake-dairy items- avast ye terrible products (with a few notable exceptions, such as GLOW cookies). I wager it’s time to focus entirely on whole foods, not wheat/dairy replacements.  I also wager we ultimately will end up moving toward a diet much lower in wheat and dairy, much as we did with soy after Mothering magazine published a damning article about soy in 2004 (and we realized we were eating 6-8 servings a day of soy!).*

It being summer, we have ventured a few perhaps ill-advised jaunts to visit the ocean and family. Restaurants are pretty much out of the question since the only vegetarian item ever available for kids seems to be macaroni and cheese. Mac and cheese seems to hold great desirability and nostalgia for G in particular: “Remember when we used to eat maccy?” he recently asked with a tear, subsequently admitting that our “adventure” with this GFCF diet has been “really, really hard.” I wondered aloud if Z felt the same, and was met with a sheepish, sad nod. That kind of suffering seems hard to justify without any surety around whether a GFCF diet is a solution for us; still, we will go the three-plus months needed for a clear indication.

I used to feel sorry for servers who have to deal with “picky” people at their tables. Now my feelings are more mixed, knowing, as I do, how hard it is for families with possible intolerances who are trying to have a rare treat: a nice, non-depressing meal out with their kids.

If, for instance, after close perusal we find that the only vegetarian, gluten free, casein free item on a menu is a frittata with potato crust and then are told, “Oh no, we don’t have that today, we only have the bacon-cheddar quiche,” are we, Full spectrum Mama, justified in going into a fugue state?

Also, we are coping with G’s anxiety around driving anywhere further away than 20 minutes. I don’t want car travel to become a phobia for him, so we have a policy now of stopping as often as he even suspects he might need to go. Two hour trips can turn quickly to four, but then again he only needed to stop twice en route to Cleveland (ten hours). Go figure. I cannot decipher if there is any correlation with any particular types of the limited foods we are still eating.

The other day I was reading The Autism Revolution (not entirely uncritically) during my lunch and I found out that several factors in G’s life -- including birth by C-section, being gestated by a mother with an autoimmune disorder and antibiotic use during the first month of his life (in the NICU) -- may be affiliated with compromised immunity, increased inflammation and allergies, and, finally, autism.

A few minutes later I checked my email and my beloved cousin, Loon, had sent me a link to “Tending the Body’s Microbial Garden,” by Carl Zimmer
(http://www.nytimes.com/2012/06/19/science/studies-of-human-microbiome-yield-new-insights.html?_r=1&emc=eta1), which basically makes very similar points. For instance, Zimmer describes how vaginal chemistry changes during pregnancy so that when babies pass through the birth canal they are coated with and ingest Lactobacillus johnsonii, thereby promoting a healthy immune system through the skin and facilitating digestion. Babies born by C-section do not receive these benefits. While we may take some steps to improve the health and population of gut bugs, baseline gut health is set to some degree during the first month of life.

I resolved to learn more about which foods and supplements might be at least somewhat helpful, and to at least try to reset our baselines! Zimmer’s article, however, questions the efficacy of currently available probiotics and discusses the emerging field of fecal transplants as an increasingly accepted procedure in the medical field.

So I was telling Pardner about all this reading…and he began to look increasingly uncomfortable. As it began to dawn on me that he apparently suspected I might be contemplating something rather “out there,” I decided to take this very concept – which, actually, up to that moment, had not occurred to me -- and roll with it:

Figure II: Horror, dread, incredulousness: Pardner, at the very moment I suggested he place some of his excrement in capsules for G and me to use as suppositories in a sort of “at-home fecal transplant,” since, “after all, I am a doctor!” **

“You need help!”/ I need help!

I am raring at the bit to try out my handy new phrase, “I need to find a way to get us out of this trap,” which was offered by a dear friend in response to my overuse of “You need help.” Of course, Z has chosen the last few weeks to be a shining beacon of peace with sporadic detours into insta-mega-tantrums far too shattering to bow in the face of gentle words. It’s as if she can sense when I feel I have our situation somewhat under control and is able, however briefly and incompletely, to relax and/or sidestep my handy new tools. Smartypants.


Bike Riding
It is with profound ambivalence that I share with you the news that G is now at long last able to ride his bike. He himself is jubilant and wants to go faster and faster!

However, the question remains as to whether or not he should ride a bike. That is, he is able to balance and peddle, yes. Other stuff, like stopping the bike, turning, riding on the proper side of the road and listening for cars remains elusive.

Paying Attention
Yesterday, G said, “When you said that it sounded like you were upset.” What was wrong? Nothing! We-e-ell, maybe I was being simultaneously talked-at by two small persons, but otherwise I was FINE.

So he picked up on that tiny bit of irritation? Amazing, especially for what may have been the first time he has ever noticed such a thing.  Oh, happy (not even slightly persnickety) summer day!

Love,
Full Spectrum Mama

* I couldn’t find the article, "The Whole Soy Story, The Dark Side of America's Favorite Health Food," by Kaayla T. Daniel, in the Mothering archives, but I did find this response: http://www.foodrevolution.org/mothering.htm
** (of philosophy)

Teaching My Son to Ride a Bike

We recently had pizza night with Noodle, her partner and her partner’s children.  The four children are a rare good match: two powerful gals who are willing to share their power for the sake of fun and two gawky boys with no (G) or low (friend) eye-rolling urges. (G’s friend is a lot younger, but G doesn’t give a hoot about age.)

After a brief – but non-cruel – period of incredulity over G’s inability ride a bike, G’s friend – wisely, I thought -- offered him his scooter. Friend rode his bike up and down the street while G attempted to scoot alongside. After trying the bike, very briefly (and, one might say, fruitlessly), G wondered if we might get a “bike like this one” instead of the larger one we have been using to try to teach him how to ride for the last several years. I had that quick sinking feeling of worrying about the cost of a new bike, but answered immediately that we would do so.

The very next day, we were driving along a country road and saw the perfect bike with a “free” sign propped up against it.  We popped that bike in the car faster than you can say “Our motor-challenged boy with aspergers is willing to try to learn to ride a bike and, goldang it, we are going to Do This!”

Pardner pumped up the tires and we were ready to start.

I have been trying to teach G to ride a bike since he was really little for so many social and physiological reasons. Bilateral movement, increased proprioception (a fancy word for self-awareness in space), basic balance-improvement, focus, self-esteem, not getting crap from other kids, and general fitness are just some of the likely benefits. I have been dismally unsuccessful.

When G gets on a bike, he gets distracted. He looks down, losing himself in the turning gears, or the patterns on the road. He leans all his weight on me, making no apparent effort to balance. He is incapable of steering and pedaling at the same time. He forgets to leave his feet on the pedals if I tell him to try his brake. In fact, there are way too many factors to take in when on a bike and – At The Same Time! -- on a street. For many years it seemed like he would never be able to ride a bike. I understand: in an earlier post, I mentioned that I didn’t really learn to drive until my late thirties, largely for similar reasons. Sensory overload and safe, direction-oriented navigation don’t necessarily go together.

Our first try on the new bike: G displayed all of the above while Mama tried to instruct. Not long after starting the lesson, Mama began to lose it. “Keep your eyes on the road. Please keep your eyes on the road. KEEP YOUR EYES ON THE ROAD!” Also, “Feet on the pedals. Please keep your feet on the pedals. FEET ON THE PEDALS!” You get the drift.

“I think this is a good time to stop,” G kept suggesting; but noooooo: Mama pushed on until it became obvious that we were getting nowhere fast.

We veered gracelessly into the driveway. G’s little face was all crumpled up. I asked him why he looked so upset. “You were yelling at me every time I made a mistake!” he wailed, and then began to sob.

My stomach clenched. I tried to explain that I was raising my voice because he wasn’t listening and that I was sorry he felt hurt. And -  “Yes,” I had to finally admit,  “I was frustrated.” It’s just a bike. And yet it isn’t.

All the things that will be harder for him than they are for other people, all the extraordinary safety concerns one has for someone with zero common sense and oft-scattered attention, common and less-common fears...all are triggered in this bicycle-riding cycle.  Plus, there was me sticking my feet under his tires periodically, which was kind of annoying to both of us.

There we stood, both holding on to the offending object, a rusty, dirty, old black bike that still smelled for some reason like manure despite a good rinse. Both shaken.

Z, nimble and chock full of sense, watched us warily. She had been riding behind us on her bike, balancing alternately on each side of her broken training wheels just for the heck of it.  If there is a bike riding spectrum, once again we see a Wide Range in this family. She seemed confused by these clumsy, sappy people.

The good thing was, though, that after a recovery period he got back on that bike. And we are still trying.  It doesn’t seem like a “never” now, it seems like a “someday,” even if that someday is far away. Not only that, I dare say we have begun to have fun in the process!

Plenty of people don’t ride bikes. No biggie. But I very simply and not-so-simply want G to be able to ride a bike if he so chooses.

I would, quite frankly, prefer that he not ride a bike unless absolutely necessary (and only with me around) – much as Pardner feels about me and driving – but I want him to have the option.

Figure I – Rocket Boy

The text on this painting reads, “There was a person who could not walk to school so he invented a rocket and flyed to school.”

G knows that he is different – neurologically, physically – from the kids in his class and beyond. This painting gives me hope that he knows that for all the things he does differently or cannot do, there are things that he can do that are more magical and more wonderful than the ordinary. Even if G never does learn to ride, I know he will find ways to make his journey.

Righteous Love,

Full Spectrum Mama