Showing posts with label gender. Show all posts
Showing posts with label gender. Show all posts

Tuesday, July 10, 2018

99 Problems





I can’t be the only person who sometimes feels the world is a minefield for anyone who is not a white, middle class or above, straight, neurotypical, cisgender, male, typically abled person with a resolved and “good” citizenship status.

Or maybe I am just an oversensitive rabble rouser. 


In any case, when I got this "special" handout after a medical appointment for my son:



...I felt aaaaaaalllllll the feelings. 

It’s hard to even respond effectively or “unemotionally” to these things that blindside you when you are just trying to get your kid’s toe looked at. (Or read a book, or go to a grocery store…I mean, you know what I mean: Unfortunately, discrimination and ignorance can pop up just about anywhere.) 

Here’s what I sent to the whole office, including individual doctors:


Dear [Medical Professional/Office],

Please see the attached partial shot of [G]’s handout (from a visit for an infected toe) from last week. 

While there is much that I could say about this — whether from a moral, legal, ethical, neurological, medical, and/or personal perspective — I will limit myself to this:
Imagine how you would feel as a human being (never mind as a CHILD) to see your way of being (the way you were born) casually maligned as a “problem” on a random medical take-home handout. 

While an individual’s spectrum status may arguably be relevant in some medical situations, an ingrown toenail is probably not one of them. In addition, your terminology is outdated. And your framing of this neurological difference — which in fact also brings many gifts — as a “problem” is quite simply cruel. 

Knowing your office and Dr. ____ (clearly a caring person), I have to assume this is an oversight. I ask on behalf of my family and all others with differences that you stop this practice and any others that may marginalize or denigrate your patients, however unintentionally.

Sincerely,
[Full Spectrum Mama], Ph.D. 




The Full Spectrums do have 99 problems (if you get my slightly inappropriate reference) — probably more like 999 — but “Asperger’s disorder” is not one. 

Love,
Full Spectrum Mama


Update: The doctor called and left a message apologizing and claiming oversight. I called back and left her a message saying I trust nothing like this will happen again to anyone in her office.

Le sigh. 





 
Welcome to Voices of Special Needs Blog Hop -- a monthly gathering of posts from special needs bloggers hosted by The Sensory Spectrum and The Jenny Evolution. Click on the links below to read stories from other bloggers about having a special needs kiddo -- from Sensory Processing Disorder to ADHD, from Autism to Dyslexia! Want to join in on next month's Voices of Special Needs Hop? Click here!

Monday, July 28, 2014

THE F-WORD AND THE B-WORD

As anyone who deals closely with female children knows, young girls can be difficult. There isn’t a whole lot of “sisterhood” in upper elementary school, it’s more “survival of the fittest.” And Z is fit, oh yes, very fit.

Accordingly, that social piece is not a big fear for me, which is nice because for Spectrum Child Sr. it’s worrisome enough for two. But some of my major concerns about Z are nonetheless directly related to girlhood. I see her acting “cute” and using a demanding yet “girly” voice to get what she wants from lots of other people and it makes me uncomfortable. The undercurrent of my very visceral reactions to Z’s “bratty,” “manipulative,” “sneaky,” “spoiled” behavior always seemed to me to be apprehension about her Attachment Disorder and how it might affect her and make her act in these ways. But my darling friend Wise Ayi recognized a deeper source and schooled me on the root of these concerns.

I was telling Wise Ayi about a particular interaction of Z’s that I had observed and how it set me on edge and – I felt – reinforced Z’s unhealthy, Attachment-Disorder-related manipulative tendencies.

“Whoever that was with [Z] isn’t a feminist. That’s what was really getting to you,” Wise Ayi explained. Her words sank in with revelatory force, opening up a full-to-exploding can o’ worms.

I flashed on a big ol’ worm: the memory of being at a celebratory dinner when Z’s brother G got his Orange Belt in Tae Kwon Do. This was a huge occasion for G and I had invited my ex, who at the time was dating a very skinny woman with a 13-year old daughter who’d recently become alarmingly thin. We ordered scallion pancakes and my ex’s ex – in front of both of our daughters (and my son) – started going off about how they were “So fattening” and “all that saturated fat…” 

I was furious! All I was able to spit out at the time was “Some fats are good for you!” but I was steaming for days over the prospect of ex's ex “infecting” Z with that kind of body consciousness. It was my first intense encounter – I live in a very progressive community – with the idea that Z could be indoctrinated into such destructive aspects of “normal” girl culture as healthy girls seeing themselves as (and being seen as) “fat,” as diets and appearance taking center stage in girls’ lives.  

But here in the manipulative, “cutesy” behavior we were talking about demeanor, not exactly appearance – a more subtle thing, but another worm nonetheless.

Wise Ayi was right, as she often is...When Z is “sassy,” when she ends all her statements so they sound like questions, when she strikes a pose after speaking, she is implicitly buying into the construct that that is how girls get what they want. And it makes me cringe, -- partly because of the Attachment Disorder aspect, but much more, I now realize, because I am a feminist. Apparently, these affectations don’t make non-feminists cringe – but I think they should.

We all suffer when one half of the population is taught to be cute in order to get their way rather than owning their power.

Admittedly, in a way, this is a form of misogyny on my part, in that I don’t want Z to use “feminine wiles” to get what she wants. On the flip, non-mysogynistic side of this stance, I want her to succeed on her own formidable skills and merit.

I don’t want my daughter’s power to be gendered any more than it inherently will be by others – especially by her own actions.

“Feminist” should not be a dirty word or an insult, though it is taken as such by many. But “bitch” sure is. The voice of misogyny calls women in power “bitches.” Misogynous culture trains women with one insidious tentacle to be coy and “sassy” -- while with another it slaps them down for just such behavior.

Is it too idealistic or naive to hope that a straightforward, strong person of any gender might avoid the moniker “bitch”?

Perhaps.

Still, I want my daughter’s voice and actions to be as strong as her heart and mind. And I want her to CHOOSE her voice, even to subvert stereotypes -- not be trained by those around her to be “cute,” or celebrated and rewarded for being coquettish or cunning. And if she gets called the F-word or the B-word along the way, I want her to have the true meaning of the F-word – the knowledge (and the endeavor to disseminate this knowledge) that women are equal to men, and deserve to be treated as such – to fall back on… whatever she chooses to call herself.


Something funny happened on the way to this can of worms: I realized that “girly” behavior and Attachment-Disordered behavior have something extremely important in common:
The impulse to get what you need by any means necessary. In case you can’t. In case you don’t “deserve” it. 
So, along with a strong voice, I want for my daughter
the inner knowledge to take root and to animate her voice and heart

that she does deserve

that she can do

anything and everything.

Love,
Full Spectrum Mama


Saturday, June 30, 2012

Safe Boundaries, or, More Toilet Stories


Another way to approach my Full Spectrum household is through a lens of boundaries: Z habitually smashes them, while G is often unaware of them. Until recently, when he told me it hurts his feelings and embarrasses him, I would publicly joke (say, when he hugged someone he’d never met) that G’s superhero name was “No Boundaries Man.”

The issue of bathrooms is just one example of this phenomenon. Now that G is older (and he’s very tall, so he seems even older than he is) I can’t take him into the Women’s Room any more. This is anxiety-provoking. I offer the following four justifications for why this is so:

1. Because G is so friendly, he will strike up a conversation with just about anyone. Anywhere.  After a few too many overheard bathroom conversations, and several attempts to gently explain how inappropriate that was, and dangerous, I told him explicitly and in strong terms not to talk to anyone in the bathroom.  Period.

After taking Z to the bathroom the other day, we were waiting for G outside the Men’s Room for a few minutes.

“G?” I called. No answer.

Increasingly frantic, I called him several more times.

Just as I was about to barge into the Men’s Room, G emerged.

“What’s the matter, Mama?” he asked. “You told me not to talk to anyone in the bathroom.”

2. Same scenario, but this time G gets out of the bathroom first.  From inside the Women’s Room I hear him striking up conversations with, basically, any man who is coming out of the Men’s Room.

“Hello, my name is [full name]” he chirps, over and over.

“Please don’t talk to people outside of the bathroom either,” I say, having rushed Z’s hand-washing to forestall the next greeting.

“But I made a friend,” he protests. “He seems like he might have been a little weird when she was a kid. Maybe she was made fun of too. In the past.”*

Score: one for making difference seem like a prestigious club; zero for safety.

3. En route to Grandmother’s G announces that we need to make an emergency stop. I manage to exit and pull into a gas station in record time. Z is asleep. Since I have parked right in front of the entrance, I allow him to run in by himself. Relieved over having made it to a bathroom in time, it takes me a few minutes to notice that we are in a really sketchy area. I watch a spectrum of shady characters entering and exiting the building with mounting dread. I decide to wake up Z, but she is in a deep sleep so I grab her and carry her inside. We make our way to the hallway and to the bathroom door…which is wide open.

There sits G on the toilet, pants around his ankles, jacket on the filthy floor, chin resting in his hand like a small, live, No Boundaries Man “thinker.”

4. A few days before school ended, the hallway bathroom lights, which are on an automatic timer, went off while G was sitting on the toilet. He began screaming in terror and by the time someone heard him and turned on the light he was in a full-on panic attack. He was still red and on the constant verge of tears when I came to pick him up.

The two problems I was later able to glean from him were as follows: First, he knew he was in a stall, but didn’t have a mental picture of the space he was in or how to get out “in the pitch dark;” second, perhaps more importantly, he “was not done wiping [his] butt.”

This, in fact, was a sign of progress: the wipe/flush/wash hands trifecta has been a challenging one for G, with at least two out of three typically forgotten.


And then we have Z. Unlike G, Z is exceedingly aware of boundaries. She tends to see boundaries, however, as mere niceties that do not apply to her. This, too, raises safety issues. And bathroom issues. For example, we have to monitor Z’s bathroom visits at home after her consumption of a few too many bottles of skin and hair products.

Outside of the bathroom, Z’s iconoclastic confidence is an invaluable tool in achieving sovereignty. Once, she told her teacher she had to go use the microwave, marched into the fourth grade classroom, placed her food in the microwave and turned it on to fry her Tupperware and food to a melty, smoking crisp.  Curiously, no one thought to question her actions once she’d assured them she “knew what she was doing.”

She pushes boundaries with words as well. We were at a plant show in a greenhouse with my extended family when I heard her tell her 4-year old cousin, “It’s so f___kin’ hot!”

“What did you just say?” I gasped.

Z looked me right in the eyes, and said, “I said it’s so freakin’ hot, Mama.”

And Z looooves her Papa (my Pardner)…Maybe a bit too much.

"I’m gonna marry Papa," she once informed me.

"No, honey, I am married to Papa," I said. "You're his stepdaughter and that’s a different relationship that is just as wonderful. You'll always be together like that."

She stared at me like I was a fool. "When you're dead," was her nonchalant response.

Another time, Pardner was in the bathroom when Z began a world-class tantrum in line at the basement food court in Grand Central Station. Upon his return, Pardner thought Z had been injured and swept her up into his arms and away from the others in line, asking with sincere concern, “What happened, sugar dumplin’?” As he walked away, she paused in her screams long enough to request -- from this apparent new ally -- “Could you poop on Mama’s head?”

Z has such a deep, scurvy, belly-chuckle of a laugh that it sometimes seems she understands just how funny her transgressions can be.


In short, both children represent a Full Spectrum of relentlessness when it comes to boundaries. Whether because of willfulness or cluelessness, in both of their lives so far boundaries are neither perceived nor approached/avoided as society expects.


By the way, speaking of toilets, and boundaries, when I myself am on the toilet BOTH children often deem it a great time to talk to me.  I’m not talking about after I’ve been lounging for ten minutes – I mean right away. They enjoy “keeping me company” and sharing important information, such as keeping me abreast of all current cat locations. Recent urgent, through-the-door inquiries – from both children at once -- include, “How do you spell my name backwards?” “How do you say my name backwards?” “How do you say your name backwards?” and “How do you spell your name backwards?”

Love,
Lluf Murtceps Amam

* Re: s/he: Yes, G does sometimes struggle with pronouns, but in this case the individual in question was transgendered and the fact that G was so casual about this gave me hope for the world!
   Re: “In the past:” I also am so glad that G believes me when I tell him that grownups are less cruel than children and that many people who struggle with being accepted in childhood and adolescence fit in fine as adults because stuff like being cool no longer matters. Is this true? I hope so.