Showing posts with label pain. Show all posts
Showing posts with label pain. Show all posts

Tuesday, August 18, 2015

LEAN IN, SPD STYLE

Picture my physically adept daughter sitting at the dining room table. She is leaning back in her chair with her feet up on said chair. I remind her that feet are not allowed on chairs at the dinner table. She removes her feet...but somehow manages to retain the exact same lean, with an expression of utter disdain and indifference.

Now picture me sitting at a different table, working in the faculty lounge of the local community college. You will notice – but I will not, at least until my neck pain tells me something is off, several hours in – that I am sitting at an extremely awkward angle.

 
                           Figure I – Awkward and Ultimately Injurious Angle of Seatedness, Not Noticed

Those of us with sensory processing differences may find ourselves in a myriad of awkward and uncomfortable situations/positions because of our divergent vestibular and proprioceptive systems, the systems that tell us where we are in space and how our movement and body location relates to what is around us.

Whereas my daughter Z’s balance, movement, and self-awareness in space are appropriate and allow her to do things in healthy, if sometimes snotty, ways, I fear I’d be barely able to function without my many, many years of ballet and yoga.... G’s study of Tae Kwon Do has done similar remediation for his vestibular, motor, and proprioceptive functioning.

I was uncomfortable sitting there at a random angle from the table, but I am so used to feeling awkward that I didn’t even wonder why, or take steps to address my discomfort, until my neck pain began to eclipse my concentration. When the normal smells and lights and sounds of daily life hurt your brain, what’s a bit more pesky input?

Becoming aware of these goofy and discomforting phenomena is the first step in trying to devise ways in which to avoid actually harming myself. But here’s the thing: mostly, I don’t even know I am doing things “differently” until something lets me know – another person (“Hey, [FSM], why don’t you put on a sweater, since you are shivering?” “OHHHHH! Great idea!”), or actual pain...

What other things do G and I do like sitting at wide angles to tables? I don’t even know. Probably plenty! Do you know a wide-angle sitter? A curb-tripper? A walker-into-walls?

Love,
Full Spectrum Mama


Welcome to the Sensory Blog Hop -- a monthly gathering of posts from sensory bloggers hosted by The Sensory Spectrum and The Jenny Evolution. Click on the links below to read stories from other bloggers about what it's like to have Sensory Processing Disorder and to raise a sensory kiddo! Want to join in on next month's Sensory Blog Hop? Click here!


Tuesday, October 14, 2014

“HURTASELF AGAIN!”

Every time we have a Silent Contest (a.k.a. “Mom’s only time to not hear talking all day”), G brings up the time his sister and cousin stole his french fries at a diner with his Full Spectrum Grandparents. Apparently, he’d been trying to win $2 in a table-wide Silent Contest (apparently, grandparents also like quiet moments), and was unable to protest the theft because of the need to be Silent.

So, naturally, he’d prefer NOT to have a Silent Contest, because he is still traumatized by The Incident. Which happened at least four years ago.

I tell this story because, well, I get it. Some of us with sensory processing differences are extremely sensitive emotionally as well as sensorially. And – whether through our senses or emotions – when we feel things, we feel them more deeply and intensely than the average person, so that sometimes they are unbearable…and sometimes they are unforgettable.

I think of it like grooves on a record (remember those? C’mon hipsters!): the original grooves are deeper, as they are more strongly felt; the grooves that remain over time are worn away more slowly, if at all, because of their original depth. Literally, though, it’s the neural connections experiencing and recalling these feelings/events that are more robust. This might account at least partially for G’s and my eidetic memories, with which we are able to visually recall whole swathes of text or things we’ve seen or heard (transformed into text, for me).

At the same time, the processing and memory space taken up by these strong feelings seems to preclude the remembering of – or paying attention to - whole other piles of things. We may seem flaky, or physically uncomfortable, or socially awkward. We may get lost – directionally or in other ways. Sorry!  Brain full!

When I was a little girl, every time I would get hurt I would say, “Hurtaself…AGAIN!” Even then, I associated pain with previous pain, and strongly recalled other injuries, because they really, really hurt. (I remember{ed} the good stuff too – that’s now one reason I remember to write thank-you notes! – but that’s another story.)



                    Figure I – “Hurtaself again,” Adult Stubbed Toe Example

Think I’m being dramatic? Last year I had one of those cavities where you chew the wrong way and you fall down in agony before even having the time to think about it. I went to a local dentist and he could not numb the tooth. I went to an Ivy-affiliated dentist several hours away who was likewise unable to numb the tooth. The fancy dentist told me my tooth was “enervated,” meaning that the nerves associated with the tooth were many and widely dispersed and thus it was impossible to eradicate the feeling in that tooth. I would need to go under general anesthesia to get this tooth fixed (both dentists were able to put temporary “band-aids” on the tooth). 

Enervated. In general terms it means to make weak or lessen someone. But in teeth it results in Feeling More. That sounds about right for just about everything in SPD land.

Love,
Full Spectrum Mama




Wednesday, March 19, 2014

PAIN – SQUARED

Parents who have children who were adopted from orphanages often have to ‘teach’ their children to acknowledge pain to themselves and to express pain to others. Although Z came into our family at only nine months of age, she had already learned not to react to her body being hurt, or to express hunger or thirst through a baby’s only language (tears).

Instead, she expressed herself primarily through screaming if being put down at any time. Once she found someone to hold her at length, a single person devoted only to her and her brother (to whom she was immediately attached as well), she was not about to be abandoned. This was particularly acute during her first weeks with her family, during which not only did she demand to be held at all times but also to be walked around while being held, resulting in SEVERE sleep deprivation for all concerned.

Arriving home, we embarked upon a plan. I had heard that children whose most basic needs for comfort have not been met may present a range of developmental and emotional challenges and I had bright ideas to “fix” some of these potential issues. Reacting to pain came first: a strategy of exaggerated response to any possible injury quickly taught Z that if something happened to her that potentially did not feel good, and there was someone nearby to help, she could get a response to her feelings and be the beneficiary of comfort measures, such as an ice pack or the proverbial band-aid.

To this day, though, Z doesn’t even blink an eye at pain when she thinks no one is looking! I have watched from the kitchen window as she has fallen – hard, or been accidently but vigorously wacked with something from afar by her clueless brother. She never makes a sound…or even a face. I wonder: did she somehow never develop some important aspect of the neurology to feel pain because of those early months of neglect? Is she just brave as heck? Does she feel the pain, but less?

G and I, being highly sensitive personages, have to work really hard not to scream when we, like, step on a stray drop of water (no - really), so this is definitely a germane question in the Full Spectrum family.

Whereas a casual hidden observer could probably catch G or I writhing privately in agony several times a day, I’d wager that observer would never see the same in Z. Z has learned that public expression of discomfort leads to results, but when there is nothing to “gain” by reacting, she seems to have decided not to waste her energy.

Similarly, she doesn’t seem to notice hunger or thirst unless in the environs of potential indulgers, in which case she will avail herself of various and sundry treats. G and I, within an hour or two of not eating, invariably find ourselves starving, even trembling, with hunger. Much longer and we become vague, lightheaded, nauseous. I happen to be hypoglycemic, and G may be too; perhaps equally significant is the fact that we both had our needs met as infants. Our physiology (sensitive) and our early environments (sensitive to our needs) matched. 

Z, in contrast, seems to be able to function indefinitely without eating, unless food is offered to her. That is, her energy stays high, her focus sharp, her spirits strong -- whether she eats regularly or not…[Obviously, I haven’t performed experiments on her, I am going on seven+ years of observation.] It’s hard to imagine she could be experiencing hunger in the profound and extreme way that G and I do and still function so well, but, as must be asked vis-à-vis her pain, doesn’t she feel some hunger? She knows her situation now is one in which her needs can be met, and yet she still self-limits on those needs…unless – and this is a real possibility -- her physiology just really is that different.

That her response varies so widely according to context potentially indicates a reduced sensitivity to her own body’s cues and/or a self-imposed (conscious or un-) denial of self-nurturing and/or a really advanced mastery of social capital. Would Z be more sensitive overall, and therefore more vulnerable, had she been nurtured differently in her first months?

People sometimes ask me to blurb their books or products or blogs on this blog and I recently agreed to read a novel about reactive attachment disorder (RAD) by a reader named Michelle Weidenbenner. Her book is called Scattered Links (http://www.amazon.com/Scattered-Links-Michelle-Weidenbenner-ebook/dp/B00HP3X6R4) and it is about a Russian orphan’s journey. I haven’t finished it (and it seems to have some Christian undertones, which may be a plus or a minus or neutral for different readers), so I haven’t yet got a blurb. I was struck powerfully, though, by this sentence from the preface, which is written in the orphan’s voice:

“We never learn how to ask for what we need because when we do, no one listens.”

I’d never connected Z’s inability to acknowledge pain or hunger with her inability to ask for what she needs or wants. Z’s refusal to ask for things comes across as regal, but it’s at base a survival strategy, a sad concession to a disappointing start.


The other day we saw a “Wild Women Don’t Get the Blues” bumper sticker and Z asked what it meant. I explained that women have often been taught to do as they are told and that doing so, just for the sake of obedience, makes women unhappy. Women should follow their own dreams and beliefs, I told her, and then they won’t get “the blues.” But sometimes the other people who make the rules -- and the other people who follow the rules -- don’t like when you make your own rules, and they might call you “wild” or “different” or “crazy,” even. And that’s okay, because you will be happier -- and stronger -- for following your own heart.

Of course, she’s still too young to make up her own rules. And I assured her I still get to boss her around for a Long Time. But I want her to know, and I will continue to say to her:  if something (or someone!) hurts you, or if you are hungry for something, speak up, my daughter!!!! How we feel – in our hearts, our bellies, our bodies, our beliefs – matters. YOU MATTER.

Now, let’s eat!

Love,
Full Spectrum Mama