BOUNDARIES

“F*cked up people will try to tell you otherwise, but boundaries have nothing to do with whether you love someone or not. They are not judgments, punishments, or betrayals. They are a purely peaceable thing: the basic principles you identify for yourself that define the behaviors that you will tolerate from others, as well as the responses you will have to those behaviors. Boundaries teach people how to treat you and they teach you how to respect yourself.”

Cheryl Strayed

Dear Persons,

Boundaries keep us healthy.

Boundaries can be any shape (including partially open), thick, thin, obvious, subtle, situational, universal, expressed, internal, pleasing and convenient for others– or not, ordinary, extraordinary, permanent, flexible, temporary,...Boundaries can and should be of any type that promotes our health and healthy relationships. Boundaries consider and encompass ourselves and others as PERSONS.

Figure I – Visual Rendering of a Full Spectrum of Boundaries

A lack of boundaries finds an interesting overlap between neurodiverse people, who, for a variety of reasons, may be unaware of the possibility/necessity of certain boundaries, and unhealthy-to-toxic families, where vulnerable members (such as children, or, sometimes [and by no means only], women) may be abused or exploited partially because of weak or nonexistent boundaries in the family dynamic.

People who desire full health can learn about healthy boundaries and enact them. This can be challenging, especially at first, because new routines and behaviors always are (hello, transitions!), but also because sometimes others may take boundaries as a personal offense, or as selfish, or a burden.

Refer those chumps to the above quote. .

Basic well-being in life also embodies healthy boundaries (eating habits, personal safety, fitness...). For people who are highly sensitive, people with sensory processing differences, and people on the autism spectrum, among others, healthy boundaries may further include a diverse range of choices, such as:

* Not shopping at big box stores (this may hold, too, for people who have boundaries around consumption, or around economic ethics regarding working conditions of employees and/or manufacturers);

* Limiting the number of steps in any set of instructions, whether at school, work, or home;

* Allowing fidgets, pressure devices, what-have-you to be integrated in the classroom or workplace;

* Limiting or specifying social interaction;

* Avoiding fluorescent lighting, certain smells, loud noise, crowds....

* Finding mutually satisfying means of communication;

* Choosing clothing, food, etc. that does not hurt, distress, or irritate us;

* Deciding the conditions under which we will choose to share our unique circumstances and needs...

We have the inherent right to deduce and determine what feels safe, healthy, and appropriate in our lives. We can and should ask those who value our mutual health and relationships or who are charged with our wellness, working conditions, and/or education (and/or the education and/or care of our children!), to honor those boundaries.

Incidentally, healthy boundaries also allow us to more abundantly exude and take in all the good stuff.

Figure II – 

Person with Healthy Boundaries Enjoying The Good Stuff

I never knew all this; that’s why I am sharing.

Love,

Full Spectrum Mama

[EDIT, 1/13: My dear online friend Kmarie  Audrey posted this deeply thoughtful and interesting post after reading the above: 
http://worldwecreate.blogspot.com/2016/01/boundaries-christianity-grace-and.html]

Welcome to the Sensory Blog Hop — a monthly gathering of posts from sensory bloggers hosted by The Sensory Spectrum and The Jenny Evolution. Click on the links below to read stories from other bloggers about what it’s like to have Sensory Processing Disorder and to raise a sensory kiddo!

An InLinkz Link-up

Second Anniversary Lists II: Attachment Disorders

I posted my first second-anniversary list, on Advocacy, about two weeks ago. Immediately following that post, I had a startlingly depressing IEP meeting, hence, the delay in this second list – and this disclaimer: none of us knows what to do all the time! Sometimes life is hard, and there are major and minor disastrophes, however hard we try.

It was “funny” to have this second second-anniversary post in the back of my mind as I endured one of the most attachment-disordered weekends we have had in recent memory.  The drama was epic, with violent and threatening tantrums starting Friday afternoon - and the consequences (effective or not) were many. Still, I stand by my lists – I just may need to adhere to them with more vim and acumen myself!

This time last year, I wrote about attachment disorders in general and listed some of the things I wished I’d known about them before embarking on some painful and discouraging times with very little knowledge of how to help my child. I had moments of desperation, regret and despair that I would not wish on anyone. If you are looking for general definitions and tips, or are new to attachment disorders, here is the link to that post: http://fullspectrummama.blogspot.com/2013/01/first-anniversary-lists-ii-attachment.html.

This year, I decided to write about our current state of slightly more advanced (partly more healed…and partly more “subtle,” as fine-tuned by Herself, La Z) mild to moderate* attachment disordered-ness.

Thoughts on “Advanced”Attachment Disorders

1. Therapeutic Parenting helps.

Thanks to what we’ve learned and implemented about therapeutic parenting, Z’s tantrums are down to once a week or less. They usually (usually – hahahaaaaaa) occur on Sundays, when we have spent what feels to G and me like a relaxing weekend. While G and I both desperately need such extended sensory/social breaks, they entail much less stimulation/world domination than Z, even on a purely kinesthetic level, craves and needs. Either “side” usually has to compromise on a given day, but on slow weekends tantrums are likely…Less likely, however, than they were during the Pre-Therapeutic Parenting Era!

2. The Sooner the Better.

I know: they say this with ALL interventions…And sometimes you just don’t know what is going on.  (For example, G wasn’t diagnosed with autism until second grade.) But if you do know that your child has an attachment disorder, and are dilly-dallying…Don’t. I know single moms who are raising teenagers with attachment disorders -- big, male teenagers – and it’s a lot harder to tackle in that dynamic than it is for me with Ms. Puny Stuff over here.

3. Cycles/Patterns.

It’s so important to bear cycles and patterns in mind when things seem bleak: change will come, for better or worse (hopefully the former!).  Z, as I have explored at length elsewhere on this blog, has certain times of year (spring in particular) and certain types of events (holidays) that seem to trigger her most disordered behavior. Other times, we may have positively peaceful stretches; these are what we look forward to – if we can remember to do so – when times are rough.

4. Presumed Omniscience.

Presumed omniscience seems to be a hallmark of many people with attachment disorders, including Z. I’ve recently had to disavow her of the habit of saying “I was thinking that,” or, alternatively, “I was just about to say that,” every few minutes. She tells her friends she has done/seen [fill-in-the-blank] “about a thousand times.” Also, she openly pities those pathetic and inferior individuals – and this is not limited to fellow children -- who have not done/seen/known [fill-in-the-blank].

“I’ll be the mom” is a phrase that is in common usage chez the Full Spectrum, especially when Z (8) mimics my instructions to G (12) regarding his “teenager practice” activities (you know, eye-rolling, grunted replies to all questions, slouching at all times…). As one might imagine, G does not take kindly to his bossy peanut of a sister’s reprimands.

Omniscience also encompasses the alleged inability to make (admit) mistakes. So when Z and I are working together on learning a new skill, say…sewing, mistakes are not made in the usual sense. Rather, the thread often “needs help” – or the fabric “has a problem.”

This omniscience may represent efforts to make sense of a world that feels unstable. It’s something we, as individuals with attachment disorders (or in interactions with those who have an attachment disorder), or as parents of children with attachment disorders, should consider.

5. Control.

Children and adults with AD may feel the need to control their environments because on a very basic level they feel unsafe. Although the connection may not always be evident, that fear impels a state of constant inner vigilance and is expressed in controlling behaviors.

If we don’t have any potential human servants non-family people at the house, much of the time Z spends at home is spent corralling one or both of our cats. She will – for long stretches of time - hold one cat very close and march him or her around the house, ignoring any wiggling or desire to escape, and “showing” him or her the views out of our windows and so on. Alternatively, she will bring both cats into a small, enclosed space and “play” with them.

We have really nice cats.

Adults need to set impeccable boundaries so that, on the one hand, a child with these challenges may feel more safe and, on the other, the child (and their pet{s}) really is safe. With attachment-disordered adult relationships, this may be more tricky. In my experience, though, the principles of boundaries and consistency will hold across quite a Full Spectrum and so it certainly cannot hurt to try this sort of healing work.

Here is a really fascinating example of boundary setting: last night, I politely asked Z to put away the deck of cards with which she was playing. She continued to spread out the cards. I reminded her of my request and she explained that she “wanted to show [me] the cards.” I insisted that she do as I had asked. Therapeutic parenting? Done! For that moment at least…

As potentially boring, relentless and annoying as such boundaries may feel in their enactment – and from day to day it can feel endless -- these baby steps help heal that frightened impulse toward constant control.  

6. Subversion.

The first thing I learned about therapeutic parenting was that everything I was doing as a progressive, choice- and respect-offering parent was wrong. To put it in less-loaded language, it was not working. My child needed me to set strong boundaries and make most choices on her behalf in order to feel safe and learn to trust. Bit by bit I got this down. But Shawty is SMART. She turned it around on me!

Ergo:

Z: “Can I go in [G]’s room?”

Mama: “Sure.”

Z: “Can I take three steps in the hallway?”

Mama: “Z, come on.”

Pause.

Z: “Mama!…Mama! Can I walk through his door?”

Or--

Mama, shouting (nicely) upstairs to bathroom while doing 17 other things: “[Z], please wash your hair now!”

Z: “Okay.”

One minute later, Z again: “Mama?”

Mama makes way back to bottom of stairs from doing 19 things: “Yes?”

Z: “Should I now rinse my hair?”

I think you can see where I am going with this.

[Insert informative “Answer Section” with instructions on how to handle this development.]

7. Refusal to Ask.

Does Z need me to charge one of her contraptions? Does another toy need batteries? Does she know how to sew a complicated project without ever having been taught? Is there something important that she wishes or requires? I won’t know unless I ask her. Because she Will. Not. Ask. For. Anything (Help-Related). See: Control. See: Presumed Omniscience…

That being said…is this an “Attachment Disorder” thing? Or is it…

8. Temperament

Z is a strong personality in a family of strong personalities. It’s hard to imagine she would have been the shy, retiring type under any circumstances. Some of Z’s less-pro-social behaviors are personality-derived, some are rooted in her attachment disorder. I have to try to strike that elusive balance between accepting Z as she is – obviously not a unique issue in any relationship -- and helping her to heal those aspects of her being that are affected by her attachment disorder. Whereas with G, who has aspergers syndrome, I use general health-promoting practices and promote radical acceptance of neurodiversity, I do actively want to “cure” Z of her attachment disorder, insofar as that is possible. As we grow together, I hope all the different parts of Z’s life  - personality, environment, history, dreams… -- will come together in increasingly healthy ways.

The main themes here can be summed up in a two concepts:

TRUST – and trust promoting actions, and

BOUNDARIES – and setting them consistently.

This latter should, ideally, set a foundation for the former. NB: this process may unfold in a remarkably extended and painstaking fashion! I hope someday Z, as her trust in the world grows, will be able to look upon such things as letting go a bit, or needing help, or not knowing something as normal human activities – both in herself and in others.

Meantime, do you know everything? Do you never need to ask for information or help? Do you never make mistakes? Are you in command and control at all times? Do you not need new batteries? Just in case the answer to any of these is “no,” I will leave you, dear reader, with these words, uttered by Z when I lost a mean game of Apples to Apples: “Sorry you’re kind of a loser.”

Coming Soon: Anniversary List III: Choosing Your Battles…

Love,

Full Spectrum Mama

* I have written elsewhere on the differences between severe and mild attachment disorders, and there is much available on this subject online. Z has what is known as a “mild to moderate” attachment disorder.

REESE’S THEORY OF HOMEOPATHY

The Full Spectrum Household has been avoiding refined sugar for over six months now.

With the younguns, this move is behavior-driven; for Maman, it’s a serious health issue.

As Halloween approaches, I find my mind wandering to – well, what do you think?

Candy.

Because we will be trick-or-treating, complete with all the quirks of Full Spectrum boundary awkwardness in doorways (every year G wanders casually into at least one random stranger’s home, focused on an enticing trinket or element of decor) and social ineptitudes (hey, now we really can’t recognize you, um, everyone) and violations (quick - watch Z’s hands in the serve-yourself bowls).

Many of our ‘specially fun qualities are exponentially amplified by being all hopped up on sugar.

So, then, post trick-or-treating, there will be these bags of candy. In the kitchen. After the Full Spectrum children are snug in their beds. In their bedrooms.

As you would expect, this little voice in the back of my mind is all, “You know what? If you just had a little bit of candy, say, a few Reese’s peanut butter cups, basically, that would be like…homeopathy!”

“How so?” the small remaining rational part of my mind wonders.

“Because, duh, if you never EAT Reese’s Cups, how will your body build up immunity? How will it know how to process Reese’s Cups, should it ever be exposed to said Cups???”

Exactly. Thus, have I put forth the prestigious, correct-ish “Reese’s Theory of Homeopathy.”

And I think it’s safe to say this scientific-homeopathic model may, in moderation, be applied to a number of other aspects of life…At least until the Special Candy Fairy comes and replaces all the candy with nurturing, commercial-free, organic playthings and natural, lo-flavor veggie-butter-leather.

Happy Halloween!

Love,

Dr. Full Spectrum Mama, Ph.D.

DEAR SON

Dear Son,

Now that you are heading into 6^th Grade, there are some things you should know.

First, while style is not of the deepest importance and may never be your forte, you should at least master Preventative Style.

I bring this up because the last time I asked you to choose your own outfit, you managed to dig up the worst, bottom-of-pants-pile, horrible, teal (teal!), Members Only style, rustling parachute pants I’d gingerly received for you as a hand-me-down and hidden away for a *dire laundry emergency. *

You located them, somehow. Then, as is your custom with leg-coverings, you pulled them up to your chest. And you tucked your shirt into your underwear and pulled that above the waist of those high water pants.

You see?

No, I am afraid you don’t, dear son.

I don’t mean to even try to teach you conformity, just basic clothing safety. You need to learn to ask yourself, “Will this item of clothing (or mode of wearing said item) instantly and inevitably cause people to make fun of me?” Some possible starter red flags might include: teal, overly embellished, ill-fitting, visible underwear.

Why should you care about this? Let’s just say it will ease the next few years of your life.

Actually, I am probably the wrong person to identify fashion red flags:

Figure I – FSM, Junior Sartorialist, not much older than G is right now. NB: You cannot even see that I had rubber bands on the bottoms of the bellbottoms – just to kinda bring ‘em in and then let ‘em flare out again -- and, gosh, I think Roman sandals?

Next, darling, while I do not want to curb your loving nature, now might well be the time to learn that not everybody has your best interests at heart. I got called into a Dread Meeting after you were away at camp with your class because your teacher was concerned about your going around and giving massages to adults you didn’t know. He worried that you might be vulnerable to getting hurt because you have no idea that some people can have bad intentions. He wondered, as I do, how we can protect your sweet heart while giving you some strong boundaries as you head into adolescence.

This is hard to explain, especially to someone honest, literal and pure-intentioned like you. But everyone gets confused about this stuff at first.

In the aforementioned meeting, your teacher told me a story about how he was once in an airport with his young son when his son asked him, “Dad, are any of these people strangers?” It’s so beautiful that there are, for you, no strangers. But it is time to learn to draw the line between who is a good candidate for a massage and who is not. Time to know that no one has the right to touch your private parts or hurt your body in any way. There will come a time for intimacy, but that time is not now, buster.

So, for now I will very simply say: you should know – at least in principle - that there is danger in the world.  The best way to avoid – prevention, again, being the theme - this danger is to reserve your trust for people you know well. Also, to never, ever touch someone you do not know or let them touch you.

Finally, regarding things you should do only in an appropriate fashion to others: courting.

I remember reading somewhere about Social Coaches for this stuff, professionals who offer pointers on just how long one may appropriately look at people one finds attractive, and things to say and do in romantical circumstances. Here, sugar, as at least part of the equation, please think offense prevention, humiliation prevention…

As with the clothing issue, I may not be the smoothest mentor here, but I can say that you should not be following girls (or boys) around at length or staring at their body parts in a noticeable way.

For example, when we are at a party (Why? Why????) and the 6^th Grade (going into 7^th) girl you are crushing on (Yes, G, we know this) arrives, you should not go stand 11” away from her and talk awkwardly at her while still holding your food plate while food falls off it, while she is talking to three other 6^th (7^th) grade boys and totally ignoring you.

When you told me, “Mom, I can handle this,” well, I tried to believe you, really I did.

But, um, I am afraid you cannot.

As I have explained, Crushgirl is about a MILLION years older than you. Yes, she, too, is 11. But she is a grade above you and female, ergo, a million years older than you.

She seems to be a super nice kid, who actually sees the wonderful person you are (versus merely tolerating you as some ignoramuses do), but

1.     she likes talking to other people, too, and

2.     in a Zillion years, a 6^th grade gal will never “like” a 5^th grade boy.

So, to return to our example, when I call you over and

1.     the fellow next to me joins me in advising you that acting like a stalker is bad, and

2.     Ayi E fills you in on how her son never talks to any of the girls and they all crush on HIM…

…To be very clear, we did mean that you should maybe give Crushgirl some space and experiment with being quiet, sure.

What we did not mean was that you should go stand 27” away from Crushgirl and pretend that you are a MIME.

Love,

Your (Full Spectrum) Mama

“free messages would you like one?”

The other day, G came home with this question taped to the front of his shirt:

                                        Figure I – “free messages would you like one”

We live in a crunchy-granola community, wherein students and teachers are liable to offer a little shoulder rub when someone looks down. G got quite a few after the whole popularity imbroglio. Then, after G’s class began to directly address inclusion issues (and people had begun paying a little more attention to the more marginalized kids in class), G had begun to offer shoulder massages on his own, probably as a known method of connecting with other students. He was recognized as being pretty good at giving these mini-massages and decided to engage in a little self-promotion, as above.

Giving massages brought G some social acceptance…so much so that he thought it would be a great idea to advertise on his own body.

I worried, seeing that sign, that G was following a course I chose early on of substituting acceptance of my generosity for acceptance of me as a person. We Spectrumites often have porous boundaries, and when we opt for giving, takers may abound.

Nevertheless G seemed really happy, said he had a lot of people who “let him” give them shoulder rubs.

His teacher apparently told him he might have a good career as a massage therapist, but G objected, stating that his chosen career as a marine biologist was more important.

“But what about the good you could do for people?” his teacher asked.

“Who needs help more, people, who can help themselves…or seals?” G responded.

Please let me know if you need a message – I can get ‘em for free.

Love,

Full Spectrum Mama

Safe Boundaries, or, More Toilet Stories

Another way to approach my Full Spectrum household is through a lens of boundaries: Z habitually smashes them, while G is often unaware of them. Until recently, when he told me it hurts his feelings and embarrasses him, I would publicly joke (say, when he hugged someone he’d never met) that G’s superhero name was “No Boundaries Man.”

The issue of bathrooms is just one example of this phenomenon. Now that G is older (and he’s very tall, so he seems even older than he is) I can’t take him into the Women’s Room any more. This is anxiety-provoking. I offer the following four justifications for why this is so:

1. Because G is so friendly, he will strike up a conversation with just about anyone. Anywhere.  After a few too many overheard bathroom conversations, and several attempts to gently explain how inappropriate that was, and dangerous, I told him explicitly and in strong terms not to talk to anyone in the bathroom.  Period.

After taking Z to the bathroom the other day, we were waiting for G outside the Men’s Room for a few minutes.

“G?” I called. No answer.

Increasingly frantic, I called him several more times.

Just as I was about to barge into the Men’s Room, G emerged.

“What’s the matter, Mama?” he asked. “You told me not to talk to anyone in the bathroom.”

2. Same scenario, but this time G gets out of the bathroom first.  From inside the Women’s Room I hear him striking up conversations with, basically, any man who is coming out of the Men’s Room.

“Hello, my name is [full name]” he chirps, over and over.

“Please don’t talk to people outside of the bathroom either,” I say, having rushed Z’s hand-washing to forestall the next greeting.

“But I made a friend,” he protests. “He seems like he might have been a little weird when she was a kid. Maybe she was made fun of too. In the past.”*

Score: one for making difference seem like a prestigious club; zero for safety.

3. En route to Grandmother’s G announces that we need to make an emergency stop. I manage to exit and pull into a gas station in record time. Z is asleep. Since I have parked right in front of the entrance, I allow him to run in by himself. Relieved over having made it to a bathroom in time, it takes me a few minutes to notice that we are in a really sketchy area. I watch a spectrum of shady characters entering and exiting the building with mounting dread. I decide to wake up Z, but she is in a deep sleep so I grab her and carry her inside. We make our way to the hallway and to the bathroom door…which is wide open.

There sits G on the toilet, pants around his ankles, jacket on the filthy floor, chin resting in his hand like a small, live, No Boundaries Man “thinker.”

4. A few days before school ended, the hallway bathroom lights, which are on an automatic timer, went off while G was sitting on the toilet. He began screaming in terror and by the time someone heard him and turned on the light he was in a full-on panic attack. He was still red and on the constant verge of tears when I came to pick him up.

The two problems I was later able to glean from him were as follows: First, he knew he was in a stall, but didn’t have a mental picture of the space he was in or how to get out “in the pitch dark;” second, perhaps more importantly, he “was not done wiping [his] butt.”

This, in fact, was a sign of progress: the wipe/flush/wash hands trifecta has been a challenging one for G, with at least two out of three typically forgotten.

And then we have Z. Unlike G, Z is exceedingly aware of boundaries. She tends to see boundaries, however, as mere niceties that do not apply to her. This, too, raises safety issues. And bathroom issues. For example, we have to monitor Z’s bathroom visits at home after her consumption of a few too many bottles of skin and hair products.

Outside of the bathroom, Z’s iconoclastic confidence is an invaluable tool in achieving sovereignty. Once, she told her teacher she had to go use the microwave, marched into the fourth grade classroom, placed her food in the microwave and turned it on to fry her Tupperware and food to a melty, smoking crisp.  Curiously, no one thought to question her actions once she’d assured them she “knew what she was doing.”

She pushes boundaries with words as well. We were at a plant show in a greenhouse with my extended family when I heard her tell her 4-year old cousin, “It’s so f___kin’ hot!”

“What did you just say?” I gasped.

Z looked me right in the eyes, and said, “I said it’s so freakin’ hot, Mama.”

And Z looooves her Papa (my Pardner)…Maybe a bit too much.

"I’m gonna marry Papa," she once informed me.

"No, honey, I am married to Papa," I said. "You're his stepdaughter and that’s a different relationship that is just as wonderful. You'll always be together like that."

She stared at me like I was a fool. "When you're dead," was her nonchalant response.

Another time, Pardner was in the bathroom when Z began a world-class tantrum in line at the basement food court in Grand Central Station. Upon his return, Pardner thought Z had been injured and swept her up into his arms and away from the others in line, asking with sincere concern, “What happened, sugar dumplin’?” As he walked away, she paused in her screams long enough to request -- from this apparent new ally -- “Could you poop on Mama’s head?”

Z has such a deep, scurvy, belly-chuckle of a laugh that it sometimes seems she understands just how funny her transgressions can be.

In short, both children represent a Full Spectrum of relentlessness when it comes to boundaries. Whether because of willfulness or cluelessness, in both of their lives so far boundaries are neither perceived nor approached/avoided as society expects.

By the way, speaking of toilets, and boundaries, when I myself am on the toilet BOTH children often deem it a great time to talk to me.  I’m not talking about after I’ve been lounging for ten minutes – I mean right away. They enjoy “keeping me company” and sharing important information, such as keeping me abreast of all current cat locations. Recent urgent, through-the-door inquiries – from both children at once -- include, “How do you spell my name backwards?” “How do you say my name backwards?” “How do you say your name backwards?” and “How do you spell your name backwards?”

Love,

Lluf Murtceps Amam

* Re: s/he: Yes, G does sometimes struggle with pronouns, but in this case the individual in question was transgendered and the fact that G was so casual about this gave me hope for the world!

   Re: “In the past:” I also am so glad that G believes me when I tell him that grownups are less cruel than children and that many people who struggle with being accepted in childhood and adolescence fit in fine as adults because stuff like being cool no longer matters. Is this true? I hope so.