Showing posts with label rainbows. Show all posts
Showing posts with label rainbows. Show all posts

Tuesday, November 10, 2015

PLEASE DON’T SAY YOU’RE SORRY...


Please don’t say you’re sorry when I tell you my son is autistic.

It’s like telling me you are sorry that my child is Black, or female, or was adopted: just plain wrong. Sure there are things about being a woman or person of color or autistic or having been adopted that stink, but none of them are intrinsic to the person living those qualities. They’re judgments and discriminations that are inflicted externally, not – at least not originally or inevitably - embodied.

My children are veritable rainbows of their own unique glory, neither defined nor necessarily limited by any one particular trait.

Just like everybody else.



Figure I – Veritable Rainbows of their own Unique Glory (with Partial Labeling for Instructional Purposes Only)

That is all.

Thanks and love,
Full Spectrum Mama

Welcome to the Sensory Blog Hop — a monthly gathering of posts from sensory bloggers hosted by The Sensory Spectrum and The Jenny Evolution. Click on the links below to read stories from other bloggers about what it’s like to have Sensory Processing Disorder and to raise a sensory kiddo!






Wednesday, March 21, 2012

Helicopters in Our Rainbow

G had a major project due last week. He was to create a poster to illustrate and outline a presentation on his research on Grover Cleveland. His written report had gone well, mostly because he enjoyed it, but I was concerned about this more public aspect of the work. Difficulties in reading social cues and a lack of interest in appearances, both aspects of aspergers syndrome, sometimes conspire in undermining G’s classroom endeavors.

Here’s a Full Spectrum question: how much and in what ways should we help our children with homework? There is a veritable rainbow of answers to this query. It’s an ultra-regular problem, but when a child has learning differences it feels perhaps even more confusing both vis-à-vis home and school. The spectre of becoming a helicopter parent is never far from parents of many “special needs” children. In school, because G has a diagnosis, some teachers may have lower expectations of him. Luckily this year, his teachers – who are wise, experienced and huge of heart – seem to get my boy.

So, home…and G himself. I know he is capable of doing just as well as other students (and even better in certain areas), but does G know that? Encouraging him to accomplish things on his own is one way he may gain this self-knowledge.

Tuesday Evening: The Project
I gave G some guidance, including drawing up a draft outline for him, in standard outline format (roman numerals, capital letters, etc.). Then I let him complete the poster on his own. Some (vast) part of me wanted to hover over him and make sure he made something that would measure up – by mainstream standards -- to the other kids’ work. But more than that I wanted him to express himself, and hoped it would build confidence and satisfaction to feel trusted and do a good job.

He proudly brought me his poster. He had entitled it, “Uncle Jumbo.” “Good start,” I told him. “Catchy.” He’d decided the day before that our pictures of Cleveland from the encyclopedia were adequate for the final presentation. He had affixed copies of these two small black and white pictures on an angle and his handwriting slanted precipitously likewise. The outline read from right to left. But he had lots and lots of information in there and had learned a lot and had a fine time doing so. All in all, it seemed he’d done a darn good job for a fourth grader.

Wednesday Morning: The Turn-In
My heart sank when I saw the other posters. Straight lines, multiple color photos and computer-generated text abounded. I knew no one could’ve worked harder or more earnestly on their posters than G had, but these looked so, so much more…professional.

As I walked back to my car after drop-off I suddenly realized that other parents must have been giving a lot more input to these projects than I had deemed appropriate. Basically, I had over-underestimated the “normal” level of parental involvement in schoolwork. Between parental non-involvement and helicopter parenting (and beyond) there must be a continuum of genuinely helpful help. I decided I’d missed the mark this time, and that I should’ve at the very least recommended straight lines.


Postlude: Tuesday Afternoon: Pickup
The kindergarteners all walk down the hallway carrying shapes made by linking toothpicks together with mini-marshmallows. Each child proudly bears his or her little diamond or square with the greatest of care.

G and his one friend (who is coming home with us) approach, having noted the marshmallows. I have a cache of vegetarian marshmallows at home and I promise to serve them as snack. I often agree to things I would not otherwise do in order to encourage this rare and precious friendship. Then I further agree -- again, against my best instinct -- that we can go straight home instead of going to the library to download extra pictures of Grover Cleveland for G’s poster (which is due the next day), the faster to eat marshmallows and play.

Next comes Z, sashaying down the hall with the most spectacular assemblage in her arms. Her marshmallow project is in a different universe, nay, a whole different Reality than the others. One of the great aspects of having a child who was adopted is one can really go to town with bragging: “Hey, I can’t take any credit but…this kid is spectacular, eh?”




                                                    Figure 1: Z, Marshmallow Mastermind


Hers was by far the most technically adept and visionary marshmallow project in the whole bunch. Z, while extremely clever and quick, is not generally the most assiduous student, so I reckoned the candy element was a key factor in the magnitude and fabulousness of her creation.

Later that evening, as G worked on his poster, I would read his report card to find he has been “off his game” this winter. He has been focusing more energy than usual on social issues – somewhat to the detriment of his academics -- because his one friend is so important to him. Learning to share this friend or to be apart from him sometimes has been a challenge – and a strain on both boys. I would realize that by caving in to not going to the library I had reinforced this trend.

Later that week his teachers would assure me that social tension is, for fourth graders, essentially “normal.” Social learning is something most upper elementary students are struggling to balance with academic learning as increased intellectual demands jockey with more complex social dynamics.

In the end, even after getting a look at the other students’ posters, G felt really great about his project. In the interest of more conventional success, I could have done the bulk of the work myself. Otherwise, even in the quiet, socially unchallenging environs of our home, no amount of friendly cajoling, firm guidance or menacing threats could have gotten G to produce a precision-masterpiece equivalent to Z’s for his presentation on Uncle Jumbo.

But…marshmallows might’ve worked.

Had I only known!

Extremely occasionally, Full Spectrum Mama discovers A Secret to the Universe. This is one of those rare moments. The secret is…Marshmallows. If all schoolwork -- all activities and interactions -- could just involve marshmallows, everything would be perfect. Sweet, soft marshmallows (vegetarian for us, please) could sweeten the toughest endeavor of any child (any person!) – and cushion the frequent falls of every imperfect parent (and other human people).

Love,
Full Spectrum Mama

Tuesday, February 14, 2012

A Spectrum Rainbow

Let’s scratch that linear spectrum from my first entry. I’m feeling now that a better visual model would be a circular rainbow pie chart deal, with everything connecting in the center and closely related qualities connecting along the perimeter.


Figure 1: An Amended Spectrum


One nice thing about this new and improved circular spectrum is that proximity can be quite telling. I pointed out that the difficulties in connection on the far end of the autism side of that original spectrum reminded me in some ways of the inability to connect on the far end of the attachment disorder side of the spectrum. Within a circle, these two pie slices – far as they might be from “normal” on the perimeter -- might themselves be quite close, with some “unknown” slices in-between. The “normal” slice might be on the opposite side of this thus-far-undefined area.

Here are some ideas for some other Full Spectrums, a veritable Spectrum Rainbow, with illustrations from my own family:


A Dance Spectrum
We do a lot of dancing in our house. All sorts of music. Sometimes we’ll even have a dance-off! I could expound at length on kinds of movement, hip-shakers and non-hip-shakers, rhythm, etc. but it basically comes down to this: If Z is Beyonce, G is Steve Martin in “The Jerk.” ‘Nuff said.

On second thought, it occurs to me that although I personally think I would fall closer to Beyonce than the Jerk on this spectrum, G definitely fancies himself quite the dancer too. Hmm.

A Spatial Self-Awareness Spectrum
Part of my project here is to distinguish and clarify, but I do so more in the ultimate aim of connection than separation. For example, most everybody has some sort of self-awareness in space, so that is a connection. Yet, for a child with Asperger syndrome, self-awareness in terms of place in the physical space one inhabits is fundamentally very different from that self-awareness for a child with an attachment disorder.

I would place Z in a position of extraordinarily high, vigilante-esque self-awareness that is connected integrally with an extraordinarily high level of awareness of others. G would seem to land close to the opposite side of this pie, with little consciousness of his weight and size and position, or of his spatial relations to others.

I am not a neurologist or psychiatrist, just a Mama wondering at and about her children (and children [and people] in general). I do wonder if this self-awareness thread relates in some way to the ways severely autistic children and children with severe attachment disorders may seem similar in their apparent disengagement with the outside world? How might their awareness of self-in-space and self vis-à-vis other people differ? How might it be useful to think of self-awareness in space and in relationships as a way IN to children’s minds and hearts? To healing, where needed?

This spectrum emerges as useful in helping me see that I, as a Full Spectrum Mama, need to help each child move closer to a healthy level of self-awareness in this regard. That’s not always true: sometimes I want to nurture that distance from the “normal” slice of the spectrum. Here, however, I would like to help Z relax her vigilance -- and G to become more attentive.

A Scotch Tape Spectrum
Some people feel perfectly comfortable using reams of scotch tape. Who are these people? Oh, pardon. I meant to write that there are different ways of approaching scotch tape use. Some of us view scotch tape as a precious, non-renewable and expensive resource that must be monitored and used in minimal, just-barely-adequate increments. Others have a “normal” take on tape. They use it when they need it, a reasonable amount…and buy more with little or no angst! And, much as it pains me to admit this, there are those who are quite “free” with their usage. [No need to let me know if you fit in this slice. I accept you. I just do not want to know.]

Z, as you might imagine, is highly responsible and abstemious in her tape-related-habits, even unto the point of Putting the Tape Back; G is a tape-waster par excellence. Left to his own devices, he would use tape for many, many non-approved purposes – and I would never be able to find the roll in any “emergency.” From time to time I have generously bought him his own roll, said roll never to be seen again.

Matters of scotch tape and self-awareness are related, yes they are: ideally I’d like to assist Z in relinquishing her control-freak position on this spectrum, while gently nurturing G in his scotch-tape consciousness.

A Style Spectrum
Here we have Z, dressed always with a flair and pizzazz and ultra-originality that nonetheless manages to scream, “I have fantastic taste!” She may be wearing seven necklaces, but they perfectly complement her nine bracelets. A cape? But of course. And matching veil. Anything she puts on, Z instantly elevates and imbues with sheer gorgeousness and chic.

Next to Z, we have people with some style and then we have a series of “neutral” or “regular” style slices eventually veering toward a lack of style…and then we have G.

My son, despite being conceived, gestated and living the first few years of his life in the East Village, has never looked right in anything fey or trendy. Something about him calls for classic, regular, GUY garb. When G was a baby, we came to call this genre “football-teddy bear clothes.” I have recently managed to sneak him into a skinny cord without too much protest although he has a really, really hard time getting in and out of this particular pant. In fact, G’s pants are usually pulled up to just under his nipples, His shoes are probably on the wrong feet. Anything he puts on looks like it was put on by mistake. Obviously, we are moving away from “normal” here…but where are we going, exactly?

I contend that we are actually edging back closer to the high style slice! I further contend that G may well be edging into what we, in our house, call “meta-cool.” He is so on his own fashion planet that he may well have crossed the pie-border into the slice just adjacent to Z’s super-flair section!


Figure 2: Flair de La Z (with brother)


A Sexuality Spectrum
The increasing acceptance of a rich, full spectrum of sexuality, gender identification and sexual orientation seems to me to be one of the great leaps forward of this new millennium. Nevertheless, so far, my kids have not been taking advantage of the wide range of available options.

We live in a super-liberal area where I would wager the vast majority of parents would answer the questions “Can girls marry girls?” and “Can boys wear dresses?” in the enthusiastic affirmative, Still, Z lives in a pink world of princesses and fairy costumes and Prince Charmings. NB: her favorite doll is named “Donna Poodle Itchy,” which does give me hope for her independent future.

When G was under one year old, he leaned over from his clip-on high chair and kissed a female model on the back of a magazine that was lying on the counter. Although he does sometimes hug his (male) best friend a leetle too long, he seems to be firmly on the hetero slice of the pie and has "always" wanted to “marry” a gal he met in kindergarten.

Wherever they ultimately end up on this spectrum is just fine with Full Spectrum Mama; the only remarkable thing here is that this is one area where Z and G reside in the most average part of the spectrum.

A Sassy Spectrum
Z is monumentally sassy. G is not, in any way, sassy. When I imagine a full sassiness spectrum with these two opposite slices, one intervening side might be varying degrees of silly sass, and the other side might be mean sass. Having abandoned all hope of reducing Z’s sassiness quotient, I now try to steer her more toward the silly side and away from the mean. And I know it wouldn’t hurt for G to develop a sassy quip or two. We’re workin’ on it!

We all fit in somewhere -- and we are all connected.

Love,
Full Spectrum Mama