Showing posts with label judgment. Show all posts
Showing posts with label judgment. Show all posts

Tuesday, October 11, 2016

SEE EVERY SPARROW



Dear Persons,

One way to describe Sensory Processing Differences (SPD) is by using a filter metaphor: the sensory and neurological filters of people with SPD filter feelings, experiences, and/or surroundings differently than do the sensory and neurological filters of most people.

Some of our filters filter out more. Sometimes people with this sort of filter are called “seekers,” because they seek more sensory input, or they are called “under-responders,” because they feel/notice/process less sensory input than the average person does. 

Some of our filters filter out less. Sometimes people with this kind of filter are called “avoiders,” because they avoid the overwhelming input that certain contexts produce. They are also sometimes called “over-responders,” because they feel/notice/process more sensory input than is typical. 

Of course, all people have different levels of sensitivity, but these differences are magnified for people with SPD. Many people with SPD live with a mixture of filters, perhaps being extremely sensitive to taste, while craving strong movement (yes, movement is a type of sense, in fact, several sorts of sense - but that’s another post!). 

Sometimes a high level of sensitivity can lead to a sort of sensory shutdown that can look like low level of sensitivity! 

Sensory integration - the seamless intermeshing of the senses, and the “normal” processing thereof - can be challenging for people with SPD. My son G and I both live with a mixture of extra-strong and extra-weak filters. Bright lights and artificial odors can knock me out, but I have severe face-blindness (prosopagnosia) and can trip over my own feet. Lights, smells, even loud sounds don’t phase G - and he shares my face-blindness in abundance - but there are other things of which he takes uncommon notice. 

One of the most wonderful things about G is that he notices every single bird in our environment. Not just your cardinals and goldfinches, but every pigeon - “Look! A pigeon!” “Another pigeon!” and every single sparrow we pass on the street - “Oh mom - do you see those cute sparrows?” “Hey, guys - a sparrow!” “There’s a sparrow under that car!” etc. 

Some people dismiss this constant-noticing, or rib him good-naturedly about it (“Wow, a sparrow!”), and it’s sometimes inconvenient and time-consuming, but I celebrate it with all my heart.

Imagine a world where every individual person was noticed and appreciated, no matter how similar, no matter how different. Imagine a culture in which everybody took the time, made the effort, to really see every single other person. I dare to think such things as gossip, bullying, stereotyping…all those evils that come from pre-judging others and from not seeing each individual as equal and worthy in their own way…would disappear.  

G doesn’t filter out every sparrow as just another instance of a drab bird among many. Instead he enjoys a sense of wonder for each tiny miracle of sparrow individuality. 

What if we all tried to see every sparrow? 




Love,
Full Spectrum Mama





Welcome to the Sensory Blog Hop — a monthly gathering of posts from sensory bloggers hosted by The Sensory Spectrum and The Jenny Evolution. Click on the links below to read stories from other bloggers about what it’s like to have Sensory Processing Disorder and to raise a sensory kiddo!
An InLinkz Link-up

Tuesday, April 28, 2015

EFF

            For “Autism Awareness Month”…which most real live autistic people and parents of kids on                             the spectrum feel should be called “Autism Acceptance Month.”
My friend Heather, @ Changed for Good, wrote a companion piece to this one; please check it out over at: http://changedforgoodautism.blogspot.com/2015/04/day-28-acceptance-is-not-awareness.html



I received this email last month:

[Swan Ayi {Auntie Swan}]
to me

Odd, NH [New Hampshire] Senate just voted to have Autism Spectrum Disorder printed on individuals' drivers licenses.  What's the point of that?


My reply:

[Full Spectrum Mama]
to [Swan Ayi]

EFF you, NH.


Hers:

[Swan Ayi]
to me

Agreed.


This is flat out DISCRIMINATION.

Suppose you heard that from now on all blonde people would be stigmatized in this way? Or all people with depression? Obviously, some blondes (depressed people…) may be precise, single-minded, “excellent drivers,” but others might have trouble focusing, or erratic behavior, or compromised intellectual ability, or – who knows?

Yes, they passed the rigorous driver’s test same as everybody else with a license. And, true, some blonde or depressed people might not need to have this factor listed on their licenses, but since some blonde and/or depressed people are “different” -- and therefore possibly dangerous drivers – the state of New Hampshire needs to make their condition perfectly clear to cashiers, police officers, airline personnel, restaurant servers, and so on…just in case.

No, I am not going to address the possibility that being autistic might affect some individuals’ driving or demeanor. So might being tired, or being an a-hole, or being worried, or distracted…

G’s shift to confidence has been so gradual, so delicate, so life-changingly wonderful. What does a ruling like this tell him and the rest of us on the spectrum, many of whom work so hard for our confidence and accomplishments and inclusion in a neurotypical world? As lame and wrong as they may be, such rules send a strong, potentially devastating message.

I’ll be letting those politicians know where we stand: My family, for one, will be spending as little time and money in NH as possible following this decision.

Love,
Full Spectrum Mama


Tuesday, September 9, 2014

PARTY BOOKS

I.

We are at a party. I am having a good time because I am emotionally prepared, have had my one allotted beer, and know lots of people. Z is fine, as always. G is careening around, reminding me of Brownian Motion, not connecting.

He’s basically gorging on sweets and walking in circles around the perimeter of the party.

I know he feels overwhelmed, maybe lonely too.




                                                  Figure I – What a Party Can Feel Like with SPD



II.

G is swinging on a vine outside the party.

“That kid is weird,” says a young white girl, maybe 7 or 8 years old. Her two companions, same general description, nod their heads.

Why? WHY IS MY KID WEIRD? What did he do? Seems to me this vine-swinging is the most “normal” thing he’s done all night.



III.

G wants to leave, as he has from our moment of arrival. I try to buy some time outside. A family - mother, father and child - are standing nearby. The father takes the child, gets in the car and leaves. From the child’s posture, I sense exhaustion.  

“Too much?” I ask the mother.

“Yes,” she says.

“Sensory processing differences?” I wonder aloud, not entirely sure why…just a gut feeling…

”Oh yeah - ___ [her child] is definitely spectrumy.”

(Note: While not everyone with Sensory Processing Disorder {SPD -- which I prefer to call “Sensory Processing Differences,” by the way} is on the autism spectrum, most people on the spectrum do have Sensory Processing Differences. Both ASDs {autism spectrum disorders – though I do take issue with “disorders” in this label as well [another post!]} and SPDs share the aspect of being neurological – vs emotional or psychological – differences.)

But back to “spectrumy:” Yay.

Now we can talk. And we do. Our kids were in different grades at the same school, which is why we looked familiar to one another. At this party, while my G was blundering awkwardly around, her child was getting and expressing an overwhelmed feeling in other ways.

So we have this great bonding conversation about the kids’ social lives and our home lives and all...

…And then she says, “I wish I’d’ve just let ____ bring a book. Then this all would have been totally fine.”

“Whoah,” I shake my head. “G wanted to bring his book too, and I just wanted him to try this and be here, try to connect and talk to people and practice social skills…you know? And it’s been pretty rough…WHY DIDN”T WE JUST LET THEM BRING THEIR BOOKS?”

We sad-smile at each other.

They could have sat together, reading. I bet they would’ve been totally happy, not careening or leaving. I bet they would’ve had the best time.

Next time.




                                      Figure II – What having a Book at a Party Can Feel Like with SPD

Love,
Full Spectrum Mama







Monday, May 19, 2014

MOVING PICTURES

G with a metallic plastic Easter egg between his face and the dining room table, rolling it back and forth (and back and forth…) with his nose, watching it with his eyes.

Z intently watching this. Being inoculated – I hope - against making fun of (or in any way judging) someone who is doing something “different,” something she’d never do -- and certainly not in public.

Me: having a flashback:

Rewind 30-35 years. See me at the dining room table, swaying slowly back and forth, almost hypnotized by the visions reflected in the curved silver water pitcher. 

Sometimes also intoning repetitive phrases under my breath, and/or slowly moving my fingers in front of my face to change, frame, or multiply what I was seeing.

Did anybody even notice me? Then and now I’ve tended to forget sometimes that people can see me, but I really, really think no one noticed these actions, which were frequent – and of which I have some of my only (and strongest) visual childhood memories.

All I can think is: it was the late-70s and early-80s: parents didn’t notice kids then the way they do now.


I’m glad Z noticed G; I noticed too – and felt, belatedly, like I belonged. Like me about a million years ago, G probably doesn’t currently notice he’s doing anything “different.”

But I love that when someday he remembers moments like this (I am thinking of David Finch, in his Journal of Best Practices, recalling pushing his nose along the rug, a LOT), G will surely know that we got and/or accepted him completely at ALL TIMES. I love, love, love that *Z* knows – without being told – that, in this family at least, “different” is absolutely “normal.”

Love,
Full Spectrum Mama



Friday, July 19, 2013

EIGHTY-SIXED


My daughter has an attachment disorder. When she is anything but entirely comfortable she talks constantly, animatedly and without ceasing.  My son has aspergers syndrome. He talks at high volume in an unmodulated voice.

In other words, my children are sometimes rather LOUD.

Consequently, we don’t spend a whole heck of a lot of time in restaurants.  But the other day we had a family date with another mother and her aspergian son and her peppy daughter and, sure enough, the table next to us complained.

See, we had thought we could have a peaceful night out with the kids.

We had walked into the restaurant and immediately seen a large, multigenerational family in the big center table. They’d smiled big, friendly, relieved smiles to see us. They knew we, with our four potentially rowdy elementary school aged kids, would balance they and their two little guys right out. 

But we all knew we’d all be trying to keep our children as well-behaved as possible for the comfort of other diners…

Our sons were excited to see each other. They began putting on raucous, clearly innocent and dorky (vs. aggressive or obnoxious - and why do I feel the need to point this out?) plays with their chopsticks. This friendship has been a beacon of hope for both boys, who struggle socially in their own schools.

Our gals were excited to see each other, chatty, berating their big brothers for being “annoying.”

Maybe four minutes after we sat down, a server approached our table. She was super sweet: “We don’t mind your kids at all but another table is very upset…” They informed us we were welcome to eat in the other part of the restaurant. The closed part? That is usually unused?

We knew it wasn’t her fault and agreed right away, trying to leave as little mess behind as possible, taking our glasses etc. with us, faces burning.

Someone from the other family asked what was going on. Looking straight at the offending table, I informed the nice family in a clear, LOUD voice that someone had complained about our children, despite the fact that they were being relatively well-behaved. I explained that we had to move to another room.

There’s a ferocity to motherhood that once made polite, feminist me hiss the B word at a woman who sniped about my letting my young child play under the table at a restaurant (at the time he'd been diagnosed with a sensory processing disorder and I knew he was overwhelmed by restaurant stimuli). ...A protectiveness that had me retorting “What are you whistling at? You better not be whistling at my baby!” at pregnancy catcallers.

As well as that loving ferocity and protectiveness, there is a sadness when someone judges your child on his or her appearance or on other inevitable aspects of their being. Doesn’t acceptance start in the little things? Allowing children to make a little noise? Reach for their Skittles? Be included even if they are a different color or neurology or different ^$%@%^% ANYTHING?

Don’t ALL children learn through having opportunities to broaden their experiences? By moving outside of their homes and their neighborhoods to restaurants, different streets, neighborhoods, cultures??? Don’t they deserve as many chances to grow as we are able to offer them?

Children who are held to basic standards of kindness yet allowed to make mistakes in the niceties without dreadful repercussions may grow up to be accepting, no?


Post the Zimmerman verdict, I listen to my friends with sons of color talking and writing about how they instruct their sons: “Don’t act suspicious,” “Stay quiet,” “Keep your hands visible, “Don’t make yourself a target”…

A week ago I might’ve ventured to hope that we were moving away from the necessity for such admonitions.

How far are we willing to go to keep our kids quiet? How far to keep them safe????

Acting “erratic” (G) and dining out while brown (Z) are definitely things I see in my kids’ futures. I want them to feel welcome in the world nonetheless! I thought taking them to a restaurant would be a good thing, but our good thing almost got eighty-sixed along with us.

Do you think, stern people of the next table, that we have not tried to have our children fit your behavioral standards?  Do you not think we are doing our best and maybe occasionally deserve the right to go out and eat dumplings?

See those first few sentences of this post where I define my kids as their conditions? You, next-table chumps, have just gone one worse than defining my children by their conditions. You haven’t even given them a chance.

Sure, sometimes a noise complaint is just a noise complaint. But I think we owe it to ALL OUR CHILDREN to give them the benefit of the doubt.

Children raised like that will likely do the same for others.


Anyway, the restaurant had another room and we went there – and the other family actually got up and came over to hang out with us out of solidarity. (Thank you, warmhearted, inclusive, attractive, multigenerational family!)

So things ended up ducky.

Still, the next time you are in a restaurant (or someplace), won’t you smile at someone who is maybe a tiny bit out of their comfort zone? Maybe even ask to watch the chopstick drama?

Love,
Full Spectrum Mama


Thursday, September 27, 2012

Curriculum?…Whatever.

Many of our friends and family members are educators, and many care intensely about what is taught in our schools. I myself am a teacher. So I feel a bit disloyal and even heretical saying this: as far as my own kids go, I don’t care, like, even at all about curriculum.

Actually, I had always planned to homeschool my children, but circumstances conspired to bring me one child who doesn’t necessarily want but desperately needs all the socializing he can get and one who would probably go postal within three consecutive days spent with Mama and without major social activity. For Z, adult acolytes will do in a pinch, but peer adulation and goose-stepped errand-running is preferred; for E, the biggest school lessons are ones he doesn’t necessarily learn at home: that while everybody is different, most people judge others for being different; that we can’t spend all our time reading; that people change their minds and plans change; how to "read" unfamiliar situations effectively…


                                    Figure I – Usefulness of Curriculum Excellence Pie Chart


As this scientific pie chart demonstrates, most learners benefit enormously from a thoughtful, organized curriculum.  I contend that my children, along with certain others such as perhaps some gifted students, or some with significant delays or learning differences, do not. It’s not that curriculum excellence always impinges on these students or is a negative thing, it just does not matter as it would for other students. My learners gain most from teachers of exceptional character and eagle eyes. So I don’t particularly care if they spend a day chasing caterpillars in the meadow or making 3-D models of the Green Mountains.

In my ideal world, time spent on curriculum development (not to mention test-prep – another post!) might well be used to consider and research how to teach contentment or generosity or ways to encourage curiosity.

However, in this reality, teachers don’t have that kind of freedom, regardless of whether they would willingly toe the Full Spectrum line. So I care that -- insofar as possible -- my kids have shining morning faces and don’t get dragged down by awful beastly kids or dreadful, serving-time-until-retirement teachers. 

G spends most of his time at home reading and learning thereby. At school, this direct absorption of knowledge is somewhat compromised by wide-ranging sensory and emotional overload.* In other words, much of his actual intellectual progress probably occurs at home.

Z isn’t too interested in books…yet. But she could efficiently extract all the necessary knowledge for an astronomical level of success from two potatoes, a rotten log and a maraca.

So, if not book-larnin’ and curricula, what can teachers offer such children?

What I hope for from teachers is:
1.     that they be kind, and
2.     that they model empathy,
3.     good judgment, and
4.     integrity; and
5.     hold an atmosphere where bullying is simply and absolutely not a possibility either for potential perpetrators OR victims.

Why?

1.     Kindness: I hope it is not too much to hope that the logic behind requesting kindness of elementary school teachers is a no-brainer.
2.     Empathy: Some non-autistic people SAY that people with autism lack empathy. This has not been my experience at all. G is the most softhearted person I know. I will say it is sometimes a stretch for him to understand what other people are feeling when his senses and neurons are feeling assaulted, but once G knows what's up he cares and understands and acts on those feelings. That is, he empathizes, often too much (so that his feelings become painful and he finds it hard to function...).  Z sometimes lacks empathy because she is in survival mode.  Teachers with healthy instincts for and expressions of this emotion offer lessons in positive, pro-social empathy that students can carry throughout their entire lives.
3.     Good judgment: discernment, moderation, discipline and common sense are elusive for G, optional for Z; as much as possible, they need to see them in action.
4.     Integrity: I want my children to see their most esteemed role models as people who follow their consciences and follow through on their word. In a classroom setting, this could be as plain as setting clear rules and consequences. When G kicked his cat because his cat knocked over his beloved fish’s tank and killed the fish, he felt guilty. I told him, “That was a natural thing to do – your cat will forgive you and you’ll do better next time.” When he told his teacher – a former Buddhist monk – about this incident, his teacher (in the context of an appropriate lesson for the whole classroom, in which many students apparently thought kicking a cat was funny) vehemently scolded him. I like that his teacher did this: he wasn’t trying to make himself popular, nor was he taking the easy, lame approach; he was speaking the truth as he knew it.
5.     No Bullying: some kids, like G, are more vulnerable to being bullied or, like Z, to being bullies. Both kinds lose in a chaotic classroom. When teachers hold the classroom space as a safe one, everyone wins. This fall, I finally had an opportunity to enlist Z’s strengths in a positive fashion. A little boy from her preschool had enrolled in kindergarten and right off the bat was getting bullied on the playground by some fifth grade boys. Z hasn’t got a bit of “victim” on and I knew that by her patronage alone, this sweet little boy would be safe. As well, her kindest instincts would be called into play in caring for this wee friend. Now I just hope those fifth graders are ok.

I spend my advocacy, that tacit, somewhat-limited leeway every parent has, on the above qualities. As long as teachers are decent people and in charge of the classroom we’re good. We have done very well so far – after all, why do people choose to become teachers? (Hint: it’s not the lucrative salary.)  I figure the clan can always learn “the new math,” but if their hearts are hurting that’s a MUCH bigger issue. 

Love,
Full Spectrum Mama


* Here is an example. At the end of fourth grade, G’s class had an end-of-school open house to share the students’ Native American projects.  There were So! Many! people in that classroom, and so many sights, bright lights and sounds to take in, that I began to get a migraine. Consequently, at this event, I could barely see people and when I could they made me nervous as I couldn’t even fathom or read what they were thinking and feeling in that context.  I had a compelling urge to flee.

Adding to that urge was the fact that G was wandering around aimlessly, talking loudly and constantly to anyone nearby without even looking at his putative listener to see if he was being heard.

Having cornered them in a relatively quiet spot, I asked his teachers, “Is he always like this in the classroom?”

“Pretty much,” they told me, with love in their voices, “Yes.”

With all due respect to G’s WONDERFUL teachers, HOW, then, can he LEARN?  I mean, I know he learns some stuff but there must be so much that is lost in the process!

 On our walk home that day I shared that being in that classroom was very challenging for me.

“Is it challenging for you?” I wondered, casually.

“Yes.”

“Is that why you talk a lot sometimes, and in a loud voice?”

 “Yes.”

 Having been so profoundly overloaded, I was daunted to realize that this is what G and all students and their teachers deal with every day. I am sure many – most -- kids are able to navigate such environments quite well, but G is not one of them.

Barring private school or a “separate-but-‘equal’” classroom for those with sensory and other neurological and/or emotional differences, what can one do to mitigate such overwhelming environments, with so many people, visual and aural and other stimuli, social and academic expectations to be met…??? How can students with sensory integration issues be effectively integrated in the classroom? If help is needed in the classroom, how can we de-stigmatize that help?

?