Showing posts with label inclusion. Show all posts
Showing posts with label inclusion. Show all posts

Monday, December 2, 2024

SHE/THEY/ME


For beloved T. And everyone else feeling scared right now, especially my 2SLGBTQIA+ siblings. I see you and I know together we will rise, elevate love over hate, and live welcoming and inclusive lives. 

But I will fight for and with you, too. 


Dear Persons,

I have a good brain. It helps me understand things about the world, like some of the rules of good manners or finances. And, in collaboration with my feelings, this brain has empowered me to be a strong advocate for justice, ethics, and inclusion. 

It’s enabled me to achieve great academic and professional success, too, although it never quite managed to suss out the institutional dynamics of schools and universities, never mind corporate environments. Nor did it help with earning the big bucks. Nonetheless, it does help me expertly manage what bucks I do have. 

In the absence of any neurotypical capacity to read social cues or intuitively grasp and honor customs and hierarchies, my brain has used logic to navigate interactions and spaces. It has a fairly powerful eidetic memory capacity. It can even answer lots of math questions without any conscious calculations. 

But there are some areas my brain hasn’t been able to help me with, such as certain aspects of proprioception, facial recognition, directions, unspoken sociocultural codes, and spatial awareness. 

And I’ve never been able to use my reasoning to figure out why people are supposed to look or act a certain way when it comes to gender and sexuality, from gender identity to relationship norms.


Statistics around gender diversity amongst Autistic people are eye-popping: We are per capita way, way more diverse in our gender identities, expressions, roles, sexual orientations, performances, relationships, lived and hoped-for family models, etc. than the neurotypical population. 

This makes sense to me, as an AFAB (assigned female at birth), nonbinary veering toward femme, pansexual Autistic human who has explored, blundered through, and lived a variety of relationship models—and who is probably naturally polyamorous—with an inclination toward living alone—despite being married (twice! see below). 

I have a doctorate in sociology, so I do have some academic-style thoughts on the matter, but I haven’t done more than anecdotal research in this area and so will hold off on sharing on that level. 

Still, I thought my personal experience might be illuminating and/or comforting for readers. 

Especially now, when those of us who don’t fit the incredibly limited bounds of the next president’s narrow vision of human worth feel more vulnerable than ever before. 

So here’s a microcosm of my own journey as a contributor to these remarkable statistics.


I don’t think I really thought about gender in childhood. I played with the (sometimes but not always gendered) toys I was given. The only toy I really remember desperately wanting was a skateboard, when I was eight or nine. From as early as I can remember, I really loved to draw, write, listen to music, and do extensive research in the library—all non-gendered activities. I was relatively content. 

But the years when you really try to fit in (mostly 11-17ish?) didn’t work out well for me. I admit to initially trying to pass as “normal,” with moderate to little success. This may have been especially challenging in my preppy environment, where the difference between Nantucket red and Caldor red was glaringly obvious to everybody but me. 

Yes, I was a blonde, thinnish, fairly tall white person, but I genuinely didn’t know what I looked like or claim my privilege.

What I did look like also included: sad, droopy, beaten down, “L sign” on my forehead.


Most social pressures that others bow to didn’t (and don’t) even register for me. Or if they did (do), and I occasionally attempt to capitulate (usually I don’t), I do it wrong. Think fluffy mohawk. 

At a certain point, I guess I just decided that wasn’t going to work—the whole fitting-in project. I realized that while I was quite good at thinking for myself, I was not able to successfully or consistently think like the “normal” NT people. 

For example, there were girls and they acted like girls and associated only with female friends and…huh? Because they have those bits?

But what would work, as a mode of living and performing my own self? I began working out my own rules for living early on. At 11 years old, I didn’t know any vegetarians, but I became vegetarian. I didn’t initially know any Queer people either, but over the course of becoming conscious of sexuality and identity (also beginning around that same age of 11), I simultaneously evolved as Queer. In both cases, I followed what seemed to make rational sense to me…but also my heart and gut. 

I became who I was.

In the process, I never found any arguments that weren’t culture- or faith-based to explain the much more common, “acceptable” ways of living (like eating meat or looking like a “girl” and only “liking” “boys”). I was both unable and unwilling to conform to such norms in my life. 


All of the wonderful Queer gender diversity we see now in many (not all!) places was much more hidden then. One risked bullying, ostracization, etc. But I had less to lose (since I was already on the margins)—and more to gain (acceptance from people who truly accepted me). 

The punk rockers and the Goths, the weirdos and the Gays…they accepted me. 


Others…not so much. The only person in my family who really welcomed me exactly as I was (most family members were clueless or worse; in their defense, it was a different era) was my grandmother Merlin, a petite beauty from Knoxville, Tennessee, who, to all appearances, led a completely conventional life and should have naturally partaken in the discriminatory norms of her generation/milieu. 

I’ll never forget Gram saying to me at a Woolworths counter in the mall, “Darlin’, people should be able to love whoever they love.” 

Eventually, at my girls’ boarding school I learned that many other girls were also attracted to girls. Passionate crushes, love relationships, and everything in-between, with plenty of drama. My first romantic relationship was with a fellow AFAB student. 


Over time, I cut my hair progressively shorter and became androgynous. I never wanted to be masculine, exactly, so much as I wanted to be an elf. A gamine. A garçonne. A demigirl (new language! I love all the new language!!!)! 

My self


Throughout my entire life, I’ve been hugely into feminism, goddess spirituality, wimmins’ cultures and communes…but also Queer, alternative, artsy, edgy spaces and ways of being. Fundamentally, I’ve lived a life both feminist and unconventional, as usual at once following logic and heart—what feels like the essence of me. 

I married two men, though. I attribute this man-marriage thing in part to my friend Pickles betting me $100 to not cut off my hair (I bet her the same), thereby veering me toward femme. Since I’ve rarely cut it since, I guess I appear more cisgender now. 

But my internal essence has always combined all of the above. As “black and white” as my thinking has always been around justice, kindness, living a moral life, honesty, etc. (I’ve written and spoken about this a lot elsewhere), gender and sexuality have always seemed arbitrary to me. 


As with being Autistic, none of this has been something I’ve discussed much publicly, in part because I assumed everything about me was pretty obvious. Also, I’ve always felt that who I am is expressed through my actions and ethics, rather than the details of my identity. 

That was, I now realize, a luxury. 

Who will they come for next, dear reader? 


As for marriage, I like the ethical clarity of monogamy. I am open to it as an alternative option to my natural lack of monogamous inclination. I think it’s a good model for raising children and creating family, although I honor other models and think they can be just as successful, ethically valid, hot/enticing, and/or safe/comforting. 

Neither society nor any pro-monogamy ethos or religion has ever convincingly convinced me otherwise. 

Now I live in one of the most 2SLGBTQIA+-friendly areas in the world. Families and people of all permutations safely thrive here. For now. So  much so that it has rarely occurred to me to interrogate how I got where I am—to be me, here. But I get that for many others in other places or coming from more typical neurologies and/or inclinations this journey to comfort and self-acceptance can be very painful and even life-threatening. 

I very recently became terrified on behalf of many people I love, as well as myself, when the country I live in elected an openly transphobic, racist, xenophobic, misogynistic rapist felon. And this draft post became even more important to me. (I am still terrified.) 

I want to be clear that being Queer is a way we are born and not a “choice” or “preference.” And obviously it’s not just an Autistic or Neurodivergent intersectionality. What I am exploring here, from my own perspective, is, first, the ways social pressures can be less obvious or binding to Neurodivergent people, as well as, second, the ways we may ultimately decide that since passing and masking are so hard and exhausting and even impossible, we might as well just be ourselves. 


I drafted these concluding paragraphs before the election, but they resonate even more now: 

My Autistic readers, do you see yourselves here? Maybe your story is quite similar—or maybe the resonances are around other aspects of your whole self that you’ve integrated and celebrated over time, perhaps despite societal or interpersonal obstacles? 

If you are not Autistic, can you imagine navigating life like this? Can you see how divergent it might feel from a neurotypical life, yet how internally coherent and integrous

And can you extrapolate to envision how Autistic people, as often not subject to, able to, and/or inclined to bow to the same pressures and conforming limitations, deserve to thrive everywhere, in their gloriously varied ways of interacting and envisioning and living and communicating, including diverse gender and relationship modalities? 

Likewise, dear reader, knowing that everyone has their own journey, are your mind and heart open to ALL other people’s perspectives and experiences, including gender and relationships and family and identity? 

I’m talking about the worth and dignity and equality of every human being, not just the ones who look, think, and behave like you—or in ways you and the people you know and the media you consume deem “acceptable.”  

Can you see and affirm our humanity? 

Love,

Full Spectrum Mama (she/they)

P.S. Here’s a formative song for me.





Monday, August 21, 2023

SCHOOL TESTING, 2023


When my co-author and I committed to writing back-to-school posts as part of our #ActuallyAutistic book outreach with Jessica Kingsley Press/Hachette, I literally could not think of a better back-to-school message to uplift families than one about the glories of schools welcoming and celebrating our children
exactly as they are

This post was originally meant to apply to the kinds of testing that children undergo during the U.S. IEP (individualized education plan) process, but it has resonated over the years with parents, educators, and students from all over dealing with standardized testing in general.  

And so, without further ado, here is "School Testing," a personal favorite--and my most read post of all time...:  


Dear Persons,


This spring, I received the voluminous results of a huge barrage of testing for my son G’s three-year evaluation for his IEP (individualized education plan). Among many, many, many other outcomes, I was informed that G had scored under the first percentile in “Irony.”

Although we have had him on a strict Monty Python/Austin Powers program for some time, and the kid has a fantastic sense of humor, we realize that perhaps he may well be lacking in “Irony.” Like many individuals who don’t fit the typical “norms” or test “average” in many areas,   G excels (sometimes extraordinarily) in some areas and is less skilled (sometimes remarkably so) in others.

In my experience, these sorts of test results--lower than expected, very uneven--are actually “normal” for many people on the autism spectrum, people with ADHD, people with sensory processing differences, people who are neurodivergent and/or disabled and/or differently-abled and/or quirky and/or don’t care about testing...

Just once, though, I’d like to receive some test results along the following lines:


Dear Dr. Full Spectrum Mama,

Here are our test results for your accepted-just-as-he-is child.

G scored in the 70th percentile for “Telling Bad Jokes.” Although we found that his jokes were generally pretty lame, and noted, significantly, that he was almost always the only one laughing at said jokes, his score was slightly lower because he at times did in fact stop telling jokes, especially when asked to “stop repeating that joke which we have already heard seven times.” Still, this is a respectable “Telling Bad Jokes” score, and something he should feel good about.

We noted several areas of growth. G’s “Confidence in the Face of a Lot of Really Daunting Obstacles” outcome has improved by 50 percentage points – to the 88th percentile - since he was last evaluated in his former school where he was getting bullied. Also improved were his ratings in “Zipping Pants” (up by 20, to 61st percentile), “Blowing Nose Rather Than Just Letting Snot Drip Down” (up by 15, to 56th), and “Overall Executive Function” (up by 3, to 4th).

His “Amazing Metaphorical/Metaphysical Insights Not Necessarily Appreciated by Peers but Mind-Blowing for Adults” score remains very high (92nd percentile), as corroborated by many of his teachers in the narrative portion of the evaluation; while the closely-related “Willingness to Write It Down According to Assignment, Dangit” score remains alarmingly low (5th percentile).  

We would also like to raise some concerns around the fact that G’s “Remembering School Stuff” score of 8th percentile does not seem to match his remarkable achievements in the areas of “Remembering How Many Days I Have Been Dating ___ “ (98th percentile), or “Remembering the Tiniest Details About Every Pokemon, Ever” (99th percentile) -  even with a 10% margin of error.

His IEP should reflect the need for accommodation in the former area, yet also take into account the possibility that G may have an asymmetrical range of priorities specific to his own...priorities.

Some of his strongest scores were in “Wonderfulness” (85th percentile; this score was mitigated by “Teenage Rote Sullenness” [45th]); “Interest in Girls” (98th percentile; this test is administered according to self-reported sexual preference and controls for Trying-to-act-like-you-are-not-thinking-about-____-All.The.Time); and “Thinking About Pokemon” (90th percentile; down nine points from previous score - possibly offset by “Interest in Girls”). “Knowing the Names of Pixies, David Bowie, Nirvana, and Red Hot Chili Peppers Songs,” at 65th percentile, was also solidly above average. 

He should continue to build on these strengths.

Although he scored just above average in “Teenage Boy Flatulence” (58th percentile), when measured against the general population G’s gassiness was easily in the top 10%.

Most importantly, for being unfailingly kind and polite (even thankful!) to our extensive testing staff, and for countless other reasons, G scored off the charts (above the 99th percentile!) in “Being Himself.”

Congratulations,
The Testing People



Love,
Full Spectrum Mama





Wednesday, January 19, 2022

BOOOOOOOOOOK!

Dear Persons,

 

I hope this finds you cozy and well despite these challenging times.


As Madeline, Judy, Celeste, and I convened for the first time 10 years ago (this month!) to discuss our initial writing group submissions, we could not have imagined what we would all go through in the following decade—or the world we would live in today.

 

Nor would I have dared to dream that the wee blog I began that day would grow to have hundreds of thousands of readers interested in neurodiversity...and ultimately result in a book collaboration that means the world to me. 

 

I'm over the moon to let you know that my first book with Jenna Gensic, The #ActuallyAutistic Guide to Advocacy: Step-by-Step Advice on How to Ally and Speak Up with Autistic People and the Autism Community, is available for pre-order here

 

Please stay tuned for more release information and reach out (my email is jineffable@gmail.com) if you'd like to help spread this book's message. We believe this text will serve Autistic people themselves, as well as families, educators, therapists, caregivers, friends, partners, employers, and anyone else who'd like to know more about Autistic perspectives.

 

In addition, we've begun work on our second book, The #ActuallyAutistic Guide to Teen and Young Adult Advocacy and Activism: Step-by-Step Advice for Autistic Youth and Those Who Care About Them. 

 

We're asking all interested Autistic teens and young adults to fill out our survey. Here are the links if you fit this demographic or know anybody who does (please only fill out one version):

 

SHORT survey: https://forms.gle/qKRmuAVsCCwEAF4A9

LONG survey, for people who really like writing: https://forms.gle/FYhmxMmvoYWpcX1e7

 

Thank you so much for being a part of this journey to spread inclusion and awareness!


Love,

Full Spectrum Mama

Goodreads Book Giveaway

The #ActuallyAutistic Guide to Advocacy by Jenna Gensic

The #ActuallyAutistic Guide to Advocacy

by Jenna Gensic

Giveaway ends April 30, 2022.

See the giveaway details at Goodreads.

Enter Giveaway

Tuesday, February 12, 2019

KOANS FOR PARENTING TEENS I-IV

Dear Persons,

The Oxford English Dictionary defines a KOAN as “a paradoxical anecdote or riddle, used in Zen Buddhism to demonstrate the inadequacy of logical reasoning and to provoke enlightenment.” 

When I am faced with questions I can’t answer, I often reframe them as koans, in order to — yeah, basically — make myself feel better.  Also, laugh. (Also, cry.) 



Teenagers provide ample opportunities for koan construction, let me tell you — never mind parenting teens with differences…

Here are some recent koans I’ve developed: 

I.
If your neurodiverse teen stays out late for the first time and then sleeps past their usual 5:30 am. wakeup…is that Self-Regulation?

II.
If micro side-eye is smaller and quicker than regular side-eye, can it still be worse?

III.
If a peer invites your developmentally different child to do drugs or vape…is that Good? Or Bad?

IV.
Why is being weird weird, but being mean isn’t weird? 



Love,
Full Spectrum Mama

Welcome to Voices of Special Needs Blog Hop -- a monthly gathering of posts from special needs bloggers hosted by The Sensory Spectrum and The Mommy Evolution. Click on the links below to read stories from other bloggers about having a special needs kiddo -- from Sensory Processing Disorder to ADHD, from Autism to Dyslexia! Want to join in on next month's Voices of Special Needs Hop? Click here!
Inlinkz Link Party

Tuesday, June 12, 2018

HAVING IT BOTH WAYS

Dear Persons,

I had an argument with myself yesterday.

I was thinking about this whole process I'm beginning for setting up G's future.

How I want him to have all the support he needs. And all the respect.

If you’re reading this, you probably have your reasons for doing so — and you probably understand some of the paradoxes of living with difference.

But yesterday my critical self — representing both a certain logic AND people who just don’t get it — accused me of trying to have it both ways.

I want G to have a safety net and scaffolding that will help him stay healthy and on point with his studies and/or work. That means federal, state, local, community, and family resources. And it means I will advocate and fight for these resources…

I will do so even as I believe in his capacities to thrive, succeed on his own terms, and even excel on a  wider scale — and will also advocate and fight for his equality on every level. 

He’s autistic and he’s brilliant. Partly, he’s brilliant because he’s autistic. Yes, without pressure he might never clean his room or his body again; yes, I hope someday that won’t be the case. But do you need to know anything — anything at all —  about birds, Pokemon, ‘90s punk funk, or Magic the Gathering? 

He doesn’t self-regulate vis-a-vis screen, sleep, food, etc. and he doesn’t self-regulate being friendly, loving, corny, and generous. For the foreseeable future, he will continue to need sensitive and wise supervision in a lot of the basics. But do you need a hug, a smile, a laugh, someone to look at you with eyes and heart utterly devoid of judgment? 

Think of all the ways people without extraordinary differences are helped out by other individuals and institutions, from federal poverty programs to local business initiatives, from recovery groups to the uptick in adult children living at home. We all need help! 

But being different is complicated. The types of public and private assistance that are commonly available are often predicated on being unable to do things that people “should” be able to do. Well, I’d like to note (not for the first or last time) that our G — like so many of his fellow “non-typical” people — can do a lot of things that not just anyone could.

Because society is the way it is (have you heard of the social model of disability?), he will need and deserve plenty of support and scaffolding if we are going to find out what he is truly capable of. At the same time, he will need and deserve a lot of respect and encouragement. All of these needs are valid and worthy because he's a disabled/differently-abled person, a twice-exceptional individual…a complex, complete human being.


Figure I - Valued Contributing Member of Society 




Figure II - Person Whose Needs are Valid and Worthy 


My hope is that G can be sustained by his environment in such a way that he can use his unique skills to become a valued contributing member of society. If that’s having it both ways, so be it.

Love,
Full Spectrum Mama






 
Welco
me to Voices of Special Needs Blog Hop -- a monthly gathering of posts from special needs bloggers hosted by The Sensory Spectrum and The Jenny Evolution. Click on the links below to read stories from other bloggers about having a special needs kiddo -- from Sensory Processing Disorder to ADHD, from Autism to Dyslexia! Want to join in on next month's Voices of Special Needs Hop? Click here!



Tuesday, March 13, 2018

AWARENESS, ACCEPTANCE, INCLUSION, AWARENESS, ACCEPTANCE, INCLUSION, AWARENESS, ACCEPTANCE, INCLUSION, AWARENESS, ACCEPTANCE, INCLUSION…


I can keep going. 
Dear Persons,a blog I usually really like (which is directed toward professionals working with diverse populations) recently published a post about potential new blood and urine tests for autism.

I won’t name the blog or the post because I don’t want to be a troll, but here’s the comment I posted after reading the piece:
“This piece frames autism as a disease. Certainly, some see 
         it as such, but there are other more holistic perspectives -
         - and I could see where this approach and post would feel 
         hurtful to some readers. It is possible to report on news in 
         a more inclusive way.”

Sometimes I feel like so much progress has been made around inclusion, acceptance, and awareness; other times I feel, well, hopeless. So I just keep doing my thing. 

I can keep harping on these things - and I will. 

Several readers suggested I post this interview (in which I do some more of that there harping on awareness, acceptance, and inclusion) here, but please do visit it on the original site:


What is one thing you’ve noticed neurotypical parents of children on the spectrum don’t understand about autism?
Hmmm…One thing? Maybe just that a different brain is not an inferior brain.
Here’s one example: my neurology responds violently and immediately to some artificial odors. I can get a vomiting migraine from smelling certain candles, air fresheners, perfumes, or cleaning products for even a few seconds. Does this make me weak and inferior? Well, it is inconvenient! But I actually think I am sort of a canary in a coal mine. I think those scents are probably not good for anybody’s brain…

Another example in this vein: a lot of neurotypical people, including parents, see black and white thinking as a problem or weakness and try to decrease it, while I – and I taught college-level ethics for a decade –  would argue that it actually often functions to make those of us on the spectrum who think in these ways highly, highly ethical, willing to endure the inconveniences that others may avoid or excuse by resorting to “grey areas” (examples of this might be high rates of vegetarianism or the lack of willingness to “use” others to get ahead…).

And to sort of turn this question around: I think people on the spectrum, including children, often feel that labels and diagnoses are used against us when maybe the people who seem to be doing so don’t intend to be that way. We all need to make sure we very clearly and intentionally use language and labels for understanding, rather than judgment. My mother always says she wishes she’d known what was going on with me as a child because she found it very hard to connect with me and I seemed to be “in my own world;”  if she’d known about neurodiversity, she could have come up with strategies for acceptance and understanding…As a consequence of this lack of knowledge and communication, I know I – like very many neurodiverse people – often felt that she (and others) wished I had been born “normal.” This is something, as I address below, that is no longer necessary with our contemporary knowledge and awareness.

Similarly, if you do choose to try to address certain differences, absolutely do let your child or loved one know that any ideas about changes, modifications, accommodations, or therapies come from a place of enhancing their life, not “correcting” them.


Your website mentions that your blog is being turned into a book. How will it be organized? What is the book’s primary purpose?
The book is still in the planning stages as I’ve been inundated with editing work, but it will be organized into chapters that reflect its primary purpose which is, I think, basically to offer some examples of how we squeezed hope and success and acceptance and even laughter out of some less-than-ideal circumstances.

I also have a daughter who is allistic and has behavioral issues because of having been adopted and suffering from an attachment disorder. She is basically the stereotypical opposite of stereotypical people on the spectrum: super savvy, manipulative, not particularly attached to being truthful, tuned in to how she can ‘win” every situation, attuned to social nuance, extremely ambitious, oriented toward fitting in and normalcy, calculating…She is the master of every social situation she finds herself in. Also, she’s completely not “sensitive,” emotionally or physically. She’s like a tank. A lot of what I address in my writing is what parenting these two extremely different kids looks like – and what I have learned from them. My idea was always that if something works for us, it should work for just about anybody because my kids are REALLY different from each other. I will also share in the book stuff about our “disastrophes” and funny stuff as well, as I do in the blog. And in both (book and blog) I do reference scientific and philosophical developments, as well as social issues and changes, because I like to use my academic background to make these subjects accessible and implementable.

As for basic organization, the chapters will be designed to address the main “stuff” that people and parents deal with, including acceptance, advocacy and self-advocacy, school topics, social possibilities…


What mistakes do neurotypical autism advocates make?
The biggest one it seems to me is speaking for autistic people. Very few of us are 100% unable to communicate in some fashion and, trust me, we all have plenty to say. If a neurotypical person has ZERO IDEA what it feels like to be neurodiverse how can they be in charge of designing spaces, educational materials, etc. for someone whose brain responds very differently from theirs in ways they might not even be able to fathom? At the very least, neurotypical people advocating for or involved with neurodiverse people should really, truly listen to them — and believe them. Then act/advocate/design/scaffold/step away accordingly…

Here’s a universal issue: generalizing. Parents, teachers, helpers, therapists: make sure you are really addressing the person in front of you! We are all different. If you’ve read or heard something, let’s say that “autistic people don’t have empathy” (a huge pet peeve misunderstanding of mine, because what some of us DO lack is the ability to easily discern how people feel, or process their responses quickly or easily, but I have NEVER met an autistic person who didn’t care – deeply – once they understood…), investigate for yourself whether the unique individual in your life actually lacks empathy!

And this isn’t really the case with many parents I’ve met, but I have seen it in school programs, including programs which train people to work with people on the spectrum, but I do see people looking at autistic people as, how can I say this…almost as study subjects/specimens more than people. My son was in a social group at a local university and I hadn’t read the fine print and there were a whole bunch of people watching the kids from behind a one-way mirror, and I was like, “DO THE KIDS KNOW ABOUT THIS?” And they DIDN’T. You can be sure I took him out of there…And actually that was when – in  a desperate bid to have some social interaction going on – I found my now best friend and her son, who is on the spectrum and my son’s best friend. We make our own (albeit a little bit nerdy, maybe…) “social group.”




On your website, you explain that “one of the greatest things to come out of the neurodiversity movement(s) is this idea that the ideas and thought patterns of divergent neurologies may be equally valid and in some cases superior.” Do you have examples of how/where you see this changing?

Oh, all over the place! In the swarms of neurodiverse blogs and books and various online and RL communities. From this abundance alone, awareness and acceptance are growing. And respect. It’s like the way in which having more than one ear piercing or blue hair made you a “freak” when I was a teen and now they are “normal.” It’s that familiarity, along with the awareness that different neurologies bring different gifts, such as intense focus or ultra-in-depth knowledge…
When I was a young, “different,” female person, the only thing I found that spoke to me was the book Nobody Nowhere; now we see Temple Grandin on mass market bookshelves…Neurotribes is a fabulous resource, albeit one written by an allistic person. I should make a list!! A quick web search shows zillions of websites and communities advocating for autism awareness and acceptance…We still have a long way to go, though, so let’s keep up the good work!


How can individuals (both on and off the spectrum) promote the furthering of this benefit of the neurodiversity movement that you describe above?
Just keep putting ourselves out there, however we feel comfortable – writing, speaking, marching…I have to say my son has been a great teacher to me about this: while I have always talked about the equality of all people and the unique strengths (as well as challenges) of neurodiverse individuals, there were ways early on in which I was trying to get him to “pass” (because I myself had such a hard time growing up “different”). He wasn’t having any of it! He’s very open about his wonderful self and never tries to act like everybody else. Because he’s also a fairly happy and confident guy, he’s won a lot of people over who might previously have used “autistic” as a slur or might never have met an autistic person. So I think the secret lies partly or even mostly in CONNECTION.

Of course sometimes we get discouraged, so that’s when learning more about our unique neurologies can be even more helpful: what do YOU need to recharge so you can be part of this progress?


What are the most important things you are doing for your neurodiverse son to help him develop a positive autistic identity?
One of the main things definitely stems from being neurodiverse myself. I discuss obstacles I’ve faced as well as identify areas of success. I’ve also shared lots of biographies of successful and amazing people on the spectrum (for example, he loves Pokemon and the creator of Pokemon was on the spectrum).  We live in a fairly rural area but I’ve tried to find ways for him to participate – he also plays Magic: The Gathering and has played in local tournaments.

I’ve also tried to steer him toward classes and school activities that will support and nurture him and maybe help nudge him toward worlds where there are statistically more people on the spectrum – sciences, languages, technology… A dear friend of mine, and the most brilliant person I know, struggled early on with undiagnosed “differences” (of a “typical” Asperger’s-type). He is now a highly successful philosopher and public intellectual and I’ve always told my son about him and they are beginning to correspond.

That being said, I am also always trying to find a balance between supporting his interests and trying to help him develop skills for self-advocacy and (possible) independence. He tends to feel I am being critical when I push him to develop habits around things he doesn’t think are important, like hygiene or homework, so I work really hard in attempting to get him on track with these things without making him feel bad or diminishing his self-respect and values.



One thing all parents and friends of people on the spectrum can do is celebrate, love, accept their neurodiverse loved ones just as they are. Everybody – neurodiverse or neurotypical – can grow and do better if given a chance, but I think we are most likely to do so if we feel loved and have a foundation of confidence and security in the first place.


Onward!

Thanks and love,
Full Spectrum Mama





 

Welcome to Voices of Special Needs Blog Hop -- a monthly gathering of posts from special needs bloggers hosted by The Sensory Spectrum and The Jenny Evolution. Click on the links below to read stories from other bloggers about having a special needs kiddo -- from Sensory Processing Disorder to ADHD, from Autism to Dyslexia! Want to join in on next month's Voices of Special Needs Hop? Click here!


An InLinkz Link-up

Here is a post by a dear friend who was trying to "hop" but may or may not have been successful:
http://worldwecreate.blogspot.ca/2018/03/about-rare-sensory-deprivation-in.html